Belgian Cancer Registry - Cancer (BCR_Cancer)

Version:
Status: inactive
How to create a CSV file for this data collection?

Start date: 01/05/2017
End date creation: 12/08/2024
End date submission: 12/08/2024
End date comments: 12/08/2024

Full view CSV column names Validation rules Reference lists Computed expressions Additional information CSV extract

1 Patient data

patient identificator

Patient identificator

Help

Please use a social security identification number (SSIN). Please note that the patient ID is always pseudonymised before being transferred to Healthdata.

Technical specs

CSV column name:

patient_id

Required:

noNameFirstnameDateofbirthSex

Mapping of the clinical building blocks (indicative only)

Concept:

be.en.hd.Patient

Data element:

PatientIdentificationNumber

Validation

The validity of the national register number is checked with the mod97 check.

Fields

Section help

Please use a social security identification number (SSIN). Please note that the patient ID is always pseudonymised before being transferred to Healthdata.

text

Internal patient ID

Help

This field can be used to enter an internal ID or reference number. It is available for internal use only and is not transferred to Healthdata. If there is an integration between HD4DP and your organisation's patient administration system, additional patient identification information such as date of birth, sex and SSIN can be automatically enriched based on this internal patient ID. Please do not fill in the social security identification number (SSIN) in this field. The SSIN must be encoded in the patient ID field.

Technical specs

CSV column name:

patient_id|internal_patient_id

Required:

false

boolean

Generated

Help

The patient_id|generated column can be set to 'TRUE' for an automatically generated patient_id.This column should only be added in case the patient_id is empty. If the column is set to 'TRUE', a patient_id is automatically generated based on the name, first name, date of birth and sex of the patient.

Technical specs

CSV column name:

patient_id|generated

Required:

false

Options

Label	Value
Yes	TRUE
No	FALSE

text

Name

Technical specs

CSV column name:

patient_id|name

Length:

Required:

false

Mapping of the clinical building blocks (indicative only)

Concept:

be.en.hd.Patient

Data element:

LastName

text

First name

Technical specs

CSV column name:

patient_id|first_name

Length:

Required:

false

Mapping of the clinical building blocks (indicative only)

Concept:

be.en.hd.Patient

Data element:

FirstNames

date

Date of birth

Technical specs

Format:

DD/MM/YYYY

CSV column name:

patient_id|date_of_birth

Required:

false

Mapping of the clinical building blocks (indicative only)

Concept:

be.en.hd.Patient

Data element:

DateOfBirth

choice

Sex

Technical specs

CSV column name:

patient_id|sex

Required:

false

Options

Label	Value
Female	F
Male	M
Unknown	U

Mapping of the clinical building blocks (indicative only)

Concept:

be.en.hd.Patient

Data element:

Gender

text

Place of residence

Technical specs

CSV column name:

patient_id|place_of_residence

Length:

Reference list:

POSTAL_CODE

Required:

false

Mapping of the clinical building blocks (indicative only)

Concept:

be.en.hd.Patient

Data element:

Postcode

boolean

Deceased?

Technical specs

CSV column name:

patient_id|deceased

Required:

false

Mapping of the clinical building blocks (indicative only)

Concept:

be.en.hd.Patient

Data element:

DeathIndicator

Options

Label	Value
Yes	TRUE
No	FALSE

date

Date of death

Technical specs

Format:

DD/MM/YYYY

CSV column name:

patient_id|date_of_death

Only when:

Required:

false

Mapping of the clinical building blocks (indicative only)

Concept:

be.en.hd.Patient

Data element:

DateOfDeath

text

Country of residence

Help

The country code is compulsory and refers to the country in which the patient is officially residing. Use the offical ISO-codes (www.iso.org/iso/home/standards/country_codes/country_names_and_code_elements.htm).

Technical specs

CSV column name:

country_of_residence

Length:

Required:

false

Mapping of the clinical building blocks (indicative only)

Concept:

be.en.hd.Patient

Data element:

Country

2 Registration

text

Specimen number

Help

Must be identical to the specimen number that accompanies the written report.

Technical specs

CSV column name:

specimen_number

Length:

Required:

true

Mapping of the clinical building blocks (indicative only)

Concept:

be.en.hd.TransferLaboratoryResult

Data element:

SpecimenNumber

date

Date specimen was taken

Help

When date the specimen was taken is unknown, the date of reception or analysis of the specimen can be used.

Technical specs

Format:

DD/MM/YYYY

CSV column name:

date_specimen_was_taken

Required:

true

Mapping of the clinical building blocks (indicative only)

Concept:

be.en.hd.TransferLaboratoryResult

Data element:

DrawingDateTime

text

Requesting hospital

Help

Fill in the “hospital” or "laboratory" that requested the pathological examination and to which the result is reported. If you use abbreviations, please provide the BCR with a conversion table. If the request originates from a private person, please mention “PRIVATE” for this variable.

Technical specs

CSV column name:

requesting_hospital

Length:

100

Required:

false

Mapping of the clinical building blocks (indicative only)

Concept:

be.en.hd.HealthcareProvider

Data element:

OrganizationName

text

Diagnostic procedure

Help

Accepted codes: ● P-axis of SNOMED or ● 1= Autopsy (incidental finding) ● 2 =Histology of the primary tumour ● 3 =Histology of the metastasis ● 4 =Cytology/hematology ● #NS= Not stated

Technical specs

CSV column name:

diagnostic_procedure

Length:

Required:

false

text

Organ/Topography

Help

Accepted codes: ● CODAP organ (the most recent list with CODAP codes is available: www.kankerregister.org / www.registreducancer.org) ● SNOMED - T-axis ● ICD-O-3 topography Laterality can be included in the organ code and/or in the separate field "Laterality" . We accept official CODAP-organ codes followed by "LI" or "RE" to indicate the laterality (only this kind of CODAP-codes can contain 6 characters). e.g. Skin of the right arm: 80ARRE.

Technical specs

CSV column name:

organ

Length:

Required:

false

Mapping of the clinical building blocks (indicative only)

Concept:

be.en.hd.TransferLaboratoryResult

Data element:

SpecimenMaterial

text

Laterality

Help

Accepted codes: ● G-axis of SNOMED or ● 1= Left ● 2= Right ● #NK= Not known ● #NA= Not applicable

Technical specs

CSV column name:

laterality

Length:

Required:

false

text

Lesion/Morphology

Help

Accepted codes: ● CODAP lesion (the most recent list with CODAP codes is available: www.kankerregister.org / www.registreducancer.org) ● SNOMED - M-axis ● ICD-O-3 morphology

Technical specs

CSV column name:

lesion

Length:

Required:

false

text

Differentiation grade

Help

Accepted codes: ● 1=well differentiated ● 2= moderately differentiated ● 3= poorly differentiated ● 4= undifferentiated / anaplastic ● 5 = T-cell ● 6 = B-cell ● 7 = Null-cell ● 8 = Natural Killer (NK)-cel ● #NK or 9 = Not known ● #NA= Not applicable ● #NS= Not stated

Technical specs

CSV column name:

differentiation_grade

Length:

Required:

false

text

pT

Help

Offical UICC TNM codes (www.uicc.org/resources/tnm).

Technical specs

CSV column name:

Length:

Required:

false

text

pN

Help

Offical UICC TNM codes (www.uicc.org/resources/tnm).

Technical specs

CSV column name:

Length:

Required:

false

text

pM

Help

Offical UICC TNM codes (www.uicc.org/resources/tnm).

Technical specs

CSV column name:

Length:

Required:

false

text

Degree of certainty (about Lesion/Morphology code)

Help

Accepted codes: ● 1 = uncertain ● 2 = differential diagnosis ● 3 = certain ● #NS= Not stated

Technical specs

CSV column name:

degree_of_certainty_about_lesion_code

Length:

Required:

false