Belgian Cancer Registry - Cervix (BCR_Cervix)
- Status: inactive
- How to create a CSV file for this data collection?
- Start date: 01/05/2017
- End date creation: 12/08/2024
- End date submission: 12/08/2024
- End date comments: 12/08/2024
1 Patient data
Patient identificator
Help
Please use a social security identification number (SSIN). Please note that the patient ID is always pseudonymised before being transferred to Healthdata.
Technical specs
CSV column name:
patient_id
Required:
noNameFirstnameDateofbirthSex
Mapping of the clinical building blocks (indicative only)
Concept:
be.en.hd.Patient
Data element:
PatientIdentificationNumber
Validation
The validity of the national register number is checked with the mod97 check.
Fields
Section help
Please use a social security identification number (SSIN). Please note that the patient ID is always pseudonymised before being transferred to Healthdata.
Internal patient ID
Help
This field can be used to enter an internal ID or reference number. It is available for internal use only and is not transferred to Healthdata. If there is an integration between HD4DP and your organisation's patient administration system, additional patient identification information such as date of birth, sex and SSIN can be automatically enriched based on this internal patient ID. Please do not fill in the social security identification number (SSIN) in this field. The SSIN must be encoded in the patient ID field.
Technical specs
CSV column name:
patient_id|internal_patient_id
Required:
false
Generated
Help
The patient_id|generated column can be set to 'TRUE' for an automatically generated patient_id.This column should only be added in case the patient_id is empty. If the column is set to 'TRUE', a patient_id is automatically generated based on the name, first name, date of birth and sex of the patient.
Technical specs
CSV column name:
patient_id|generated
Required:
false
Options
| Label | Value |
| Yes | TRUE |
| No | FALSE |
Name
Help
The name of the patient is never transferred to Healthdata and is available for your information only.
Technical specs
CSV column name:
patient_id|name
Length:
60
Required:
noSSIN(Needed only if no national register number is entered)
Mapping of the clinical building blocks (indicative only)
Concept:
be.en.hd.Patient
Data element:
LastName
First name
Help
The first name of the patient is never transferred and is available for your information only.
Technical specs
CSV column name:
patient_id|first_name
Length:
60
Required:
noSSIN(Needed only if no national register number is entered)
Mapping of the clinical building blocks (indicative only)
Concept:
be.en.hd.Patient
Data element:
FirstNames
Date of birth
Technical specs
Format:
DD/MM/YYYY
CSV column name:
patient_id|date_of_birth
Required:
noSSIN(Needed only if no national register number is entered)
Mapping of the clinical building blocks (indicative only)
Concept:
be.en.hd.Patient
Data element:
DateOfBirth
Sex
Technical specs
CSV column name:
patient_id|sex
Required:
noSSIN(Needed only if no national register number is entered)
Options
| Label | Value |
| Female | F |
| Male | M |
| Unknown | U |
Mapping of the clinical building blocks (indicative only)
Concept:
be.en.hd.Patient
Data element:
Gender
Place of residence
Technical specs
CSV column name:
patient_id|place_of_residence
Length:
50
Reference list:
POSTAL_CODE
Required:
false
Mapping of the clinical building blocks (indicative only)
Concept:
be.en.hd.Patient
Data element:
Postcode
Deceased?
Technical specs
CSV column name:
patient_id|deceased
Required:
false
Mapping of the clinical building blocks (indicative only)
Concept:
be.en.hd.Patient
Data element:
DeathIndicator
Options
| Label | Value |
| Yes | TRUE |
| No | FALSE |
Date of death
Technical specs
Format:
DD/MM/YYYY
CSV column name:
patient_id|date_of_death
Only when:
Required:
false
Mapping of the clinical building blocks (indicative only)
Concept:
be.en.hd.Patient
Data element:
DateOfDeath
Country of residence
Help
The country code is compulsory and refers to the country in which the patient is officially residing. Use the offical ISO-codes (www.iso.org/iso/home/standards/country_codes/country_names_and_code_elements.htm).
Technical specs
CSV column name:
country_of_residence
Length:
50
Required:
false
Mapping of the clinical building blocks (indicative only)
Concept:
be.en.hd.Patient
Data element:
Country
2 Registration
Specimen number
Help
Must be identical to the specimen number that accompanies the written report.
Technical specs
CSV column name:
specimen_number
Length:
60
Required:
true
Mapping of the clinical building blocks (indicative only)
Concept:
be.en.hd.TransferLaboratoryResult
Data element:
SpecimenNumber
Date specimen was taken
Help
When date the specimen was taken is unknown, the date of reception or analysis of the specimen can be used.
Technical specs
Format:
DD/MM/YYYY
CSV column name:
date_specimen_was_taken
Required:
true
Mapping of the clinical building blocks (indicative only)
Concept:
be.en.hd.TransferLaboratoryResult
Data element:
DrawingDateTime
Requesting hospital
Help
Fill in the "hospital" or "laboratory" that requested the pathological examination and to which the result is reported. If you use abbreviations, please provide the BCR with a conversion table. If the request originates from a private person, please mention "PRIVATE" for this variable.
Technical specs
CSV column name:
requesting_hospital
Length:
100
Required:
false
Mapping of the clinical building blocks (indicative only)
Concept:
be.en.hd.HealthcareProvider
Data element:
OrganizationName
RIZIV/INAMI number of the applicant of the test
Help
Use by preference the complete (11 character) RIZIV/INAMI number.
Technical specs
CSV column name:
rizivinami_number_of_the_applicant_of_the_test
Length:
15
Required:
false
Mapping of the clinical building blocks (indicative only)
Concept:
be.en.hd.Caregiver
Data element:
CareGiverIdentificationNumber
Quality of the specimen
Help
This variable is used for cervical smears (cytology) only, not for histological samples. Accepted codes : ● SUF=Sufficient: the sample is of sufficient quality to result in a reliable diagnosis. ● INSU= Insufficient: no reliable test result could be determined or the specimen could not be evaluated. The code ‘INSU’ should only be used if no reliable diagnosis can be established. This implies that a new smear should be taken.
Technical specs
CSV column name:
quality_of_the_specimen
Length:
30
Required:
false
Diagnostic procedure
Help
Accepted codes: ● P-axis of SNOMED or ● 1= Autopsy (incidental finding) ● 2 =Histology of the primary tumour ● 3 =Histology of the metastasis ● 4 =Cytology/hematology ● #NS= Not stated
Technical specs
CSV column name:
diagnostic_procedure
Length:
30
Required:
false
Organ/Topography
Help
Accepted codes: ● CODAP organ (the most recent list with CODAP codes is available: www.kankerregister.org / www.registreducancer.org) ● SNOMED - T-axis ● ICD-O-3 topography
Technical specs
CSV column name:
organ
Length:
50
Required:
false
Mapping of the clinical building blocks (indicative only)
Concept:
be.en.hd.TransferLaboratoryResult
Data element:
SpecimenMaterial
Lesion/Morphology
Help
Accepted codes: ● CODAP lesion (the most recent list with CODAP codes is available: www.kankerregister.org / www.registreducancer.org) ● SNOMED - M-axis ● ICD-O-3 morphology If no information on the lesion is available or only an additional test is performed without histological diagnosis (eg HPV), the value #NA (= not applicable) can be mentioned for the variable ‘Lesion’.
Technical specs
CSV column name:
lesion
Length:
50
Required:
false
Degree of certainty (about Lesion/Morphology code)
Help
Accepted codes: ● 1 = uncertain ● 2 = differential diagnosis ● 3 = certain ● #NS= Not stated
Technical specs
CSV column name:
degree_of_certainty_about_lesion_code
Length:
20
Required:
false
HPV high risk test results
Help
Accepted codes: ● HPV- = Test performed, no HPV detected / Test performed, HPV detected but only low or intermediate risk ● HPV+ = Test performed, HPV High risk detected ● HPVi = Test performed, no analysis or reliable test result possible
Technical specs
CSV column name:
hpv_high_risk_test_results
Length:
50
Required:
false
Mapping of the clinical building blocks (indicative only)
Concept:
be.en.hd.TransferLaboratoryResult
Data element:
Result
HPV high risk types detected
Help
Following 13 HPV-types are considered by the BCR as high risk HPV-types: 16,18,31,33,35,39,45,51,52,56,58,59,68 and should be coded if your HPV test can discriminate different genotypes. Multiples HPV can be entered and must be separated by commas ','. Possible codes (meaning of the codes): ● HP16 (HPV Type 16) ● HP18 (HPV Type 18) ● HP39 (HPV Type 39) ● HPOT (HPV high risk genotype different from HPV16/HPV18, if no genotyping other than HPV16/HPV18 is possible)
Technical specs
CSV column name:
hpv_high_risk_types_detected
Length:
250
Required:
false
Mapping of the clinical building blocks (indicative only)
Concept:
be.en.hd.TransferLaboratoryResult
Data element:
Result
Nomenclature number(s)
Help
Recommendations: a. Official nomenclature code: if reimbursed by RIZIV/INAMI b. Non-official (dummy) code: if not reimbursed by RIZIV/INAMI (please provide the BCR with the meaning of each used dummy code) c. #NK: if the reimbursement by the RIZIV/INAMI is uncertain In case of more than one nomenclature number, they should be entered separated by a comma.
Technical specs
CSV column name:
nomenclature_numbers
Length:
250
Required:
false