Central Registry for Rare Diseases (CRRD)
- Status: inactive
- Unique ID: the national registry ID of the patient, the date of the current consultation and the Orpha code(s)
- How to create a CSV file for this data collection?
- Start date: 01/06/2018
- End date creation: 17/01/2025
- End date submission: 16/06/2025
- End date comments: 16/06/2025
1 Identification
Unique NIHDI-code of the registering centre
Help
Unique NIHDI-code of the registering centre.
Technical specs
CSV column name:
unique_nihdicode_of_the_registering_centre
Required:
true
Options
| Label | Value |
| 81199094996 - UZA | 81199094996 |
| 82499092996 - UZ Leuven | 82499092996 |
| 82699032996 - St-Luc UCL | 82699032996 |
| 82899069996 - Erasme | 82899069996 |
| 82999039996 - UZ Brussel | 82999039996 |
| 84499074996 - UZ Gent | 84499074996 |
| 85299028996 - IPG | 85299028996 |
| 86299019996 - CHU Liège | 86299019996 |
Mapping of the clinical building blocks (indicative only)
Concept:
be.en.hd.HealthcareProvider
Data element:
HealthcareProviderIdentificationNumber
NIHDI-code of the specialist
Help
The NIHDI code of the physician who saw the patient in consultation.
Technical specs
CSV column name:
nihdicode_of_the_specialist
Length:
100
Reference list:
PHYSICIAN
Required:
true
Mapping of the clinical building blocks (indicative only)
Concept:
be.en.hd.HealthProfessional
Data element:
HealthProfessionalIdentificationNumber
National registry ID of the patient
Help
Please encode a social security identification number (SSIN). Please note that the patient ID is always pseudonymised before being transferred to Healthdata.
Technical specs
CSV column name:
patient_id
Required:
true
Validation
The validity of the national register number is checked with the mod97 check.
Fields
Section help
Please encode a social security identification number (SSIN). Please note that the patient ID is always pseudonymised before being transferred to Healthdata.
Internal patient ID
Help
This field can be used to enter an internal ID or reference number. It is available for internal use only and is not transferred to the Healthdata. If there is an integration between HD4DP and your organisation's patient administration system, additional patient identification information such as date of birth, sex and SSIN can be automatically enriched based on this internal patient ID. Please do not encode the social security identification number (SSIN) in this field. The SSIN must be encoded in the patient ID field.
Technical specs
CSV column name:
patient_id|internal_patient_id
Required:
false
Mapping of the clinical building blocks (indicative only)
Concept:
be.en.hd.Patient
Data element:
PatientIdentificationNumber
Generated
Help
The patient_id|generated column can be set to 'TRUE' for an automatically generated patient_id.This column should only be added in case the patient_id is empty. If the column is set to 'TRUE', a patient_id is automatically generated based on the name, first name, date of birth and sex of the patient.
Technical specs
CSV column name:
patient_id|generated
Required:
false
Options
| Label | Value |
| Yes | TRUE |
| No | FALSE |
Name
Help
The name of the patient is never transferred to Healthdata and is available for your information only.
Technical specs
CSV column name:
patient_id|name
Length:
50
Required:
noSSIN(Needed only if no national register number is entered)
Mapping of the clinical building blocks (indicative only)
Concept:
be.en.hd.Patient
Data element:
LastName
First name
Help
The first name of the patient is never transferred and is available for your information only.
Technical specs
CSV column name:
patient_id|first_name
Length:
50
Required:
noSSIN(Needed only if no national register number is entered)
Mapping of the clinical building blocks (indicative only)
Concept:
be.en.hd.Patient
Data element:
FirstNames
Date of birth
Technical specs
Format:
DD/MM/YYYY
CSV column name:
patient_id|date_of_birth
Required:
true
Mapping of the clinical building blocks (indicative only)
Concept:
be.en.hd.Patient
Data element:
DateOfBirth
Validation
- Time of first symptoms cannot be before the date of birth. In case of prenatal symptoms, please provide the gestational age. (warning)
- Time of first symptoms cannot be a future date (warning)
- Time of current diagnosis cannot be before the date of birth. If you want to register a prenatal diagnosis, please enter the gestational age. (warning)
- Time of current diagnosis cannot be a future date (warning)
- Date of birth cannot be in the future (warning)
- Birth date cannot be after the date of death (warning)
- Date of first consultation in the registering centre cannot be before the date of birth (warning)
- Date of current consultation cannot be before the date of birth (warning)
Sex
Help
Sex of the patient as it appears in the National Register or on the patient's passport or birth certificate.
Technical specs
CSV column name:
patient_id|sex
Required:
true
Options
| Label | Value |
| Female | F |
| Male | M |
| Unknown | U |
Mapping of the clinical building blocks (indicative only)
Concept:
be.en.hd.Patient
Data element:
Gender
Place of residence
Help
The postcode of the main place of residence of the patient.
Technical specs
CSV column name:
patient_id|place_of_residence
Length:
50
Reference list:
POSTAL_CODE
Required:
true
Mapping of the clinical building blocks (indicative only)
Concept:
be.en.hd.Patient
Data element:
Place of residence
Validation
- For Belgian residents (country of residence equal to "BE"), the place of residence should contain a valid Belgian postal code (selected from the available drop-down list) (warning)
- The place of residence contains a Belgian postal code, but the country of residence is different from "BE" (warning)
- Place of residence cannot be equal to '999' (warning)
Deceased?
Technical specs
CSV column name:
patient_id|deceased
Required:
false
Mapping of the clinical building blocks (indicative only)
Concept:
be.en.hd.Patient
Data element:
DeathIndicator
Options
| Label | Value |
| Yes | TRUE |
| No | FALSE |
Date of death
Technical specs
Format:
DD/MM/YYYY
CSV column name:
patient_id|date_of_death
Only when:
Required:
false
Mapping of the clinical building blocks (indicative only)
Concept:
be.en.hd.Patient
Data element:
DateOfDeath
Validation
- Birth date cannot be after the date of death (warning)
Country of residence
Help
The country of the main place of residence of the patient.
Technical specs
CSV column name:
country_of_residence
Length:
50
Reference list:
COUNTRY
Required:
true
Mapping of the clinical building blocks (indicative only)
Concept:
be.en.hd.Patient
Data element:
Country
Validation
- For Belgian residents (country of residence equal to "BE"), the place of residence should contain a valid Belgian postal code (selected from the available drop-down list) (warning)
- The place of residence contains a Belgian postal code, but the country of residence is different from "BE" (warning)
- Country of residence cannot be equal to '999' (warning)
2 Consultation
Referred by
Help
The physician or entity who referred the patient to the registering centre.
Technical specs
CSV column name:
referred_by
Length:
200
Reference list:
CRRD_REFERRED_BY
Required:
true
Mapping of the clinical building blocks (indicative only)
Concept:
be.en.hd.HealthProfessional
Data element:
HealthProfessionalRole
Country of referral
Help
The country of the physician/entity who referred the patient to the registering centre.
Technical specs
CSV column name:
country_of_referral
Length:
50
Reference list:
COUNTRY
Required:
true
Mapping of the clinical building blocks (indicative only)
Concept:
be.en.hd.HealthcareProvider
Data element:
Address::AddressInformation
Validation
- Country of referral cannot be equal to '999' (warning)
Type of service requested
Help
The type of service requested from the registering centre. It does not concern the specific clinical picture (symptoms).
Technical specs
CSV column name:
type_of_service_requested
Length:
200
Reference list:
CRRD_TYPE_OF_SERVICE_REQUESTED
Required:
true
Mapping of the clinical building blocks (indicative only)
Concept:
be.en.hd.Procedure
Data element:
ProcedureType
Date of first consultation in the registering centre
Help
The date on which the patient consulted for the first time a physician in the registering centre.
Technical specs
Format:
DD/MM/YYYY
CSV column name:
date_of_first_consultation_in_the_registering_centre
Required:
true
Mapping of the clinical building blocks (indicative only)
Concept:
be.en.hd.Encounter
Data element:
StartDateTime
Validation
- Date of first consultation in the genetic centre cannot be in the future (warning)
- Date of first consultation in the registering centre cannot be after the date of current consultation (warning)
- Date of first consultation in the registering centre cannot be before the date of birth (warning)
Time of current diagnosis
Help
The time of diagnosis is the date, or best estimate thereof, when the current diagnosis (or change, whether or not final) was communicated to the patient by a physician.
Technical specs
CSV column name:
time_of_current_diagnosis
Required:
false
Options
| Label | Value |
| Full date | full_date |
| Only month and year | only_month_and_year |
| Only year | only_year |
| Age range | age_range |
| Gestational age | gestational_age |
| Unknown | unknown |
Mapping of the clinical building blocks (indicative only)
Concept:
be.en.hd.Problem
Data element:
ProblemStatusDate
Validation
- Time of current diagnosis: the format for date is DD/MM/YYYY (warning)
- Time of current diagnosis cannot be before the date of birth. If you want to register a prenatal diagnosis, please enter the gestational age. (warning)
- Time of current diagnosis cannot be a future date (warning)
- Time of current diagnosis: the format for month and year only is MM/YYYY (warning)
- Time of current diagnosis: the format for year only is YYYY (warning)
- Time of current diagnosis: maximum length of age range is 11 characters (warning)
- Time of current diagnosis: maximum length of gestational age is 11 characters (warning)
Time of current diagnosis: specify
Help
The answering possibilities are: for "full_date": dd/mm/yyyy for "month_and_year": mm/yyyy for "only_year": yyyy for "age_range": x-y for "gestational_age": x weeks for "unknown": unknown If an age range was chosen as a format, you can use the following categories but you are not obliged to use them. You can still type another age range, as long as the character "-" is in it, it will be accepted. If the symptoms were first detected during prenatal testing (ultrasound) the time must be registered in gestational weeks (semaines, weken or abbreviation). Age range categories: corresponding to age categories in Orphanet - 0 - 4 weeks Neonatal period - 4w – 2 year Infancy - 2 – 11 year Childhood - 12 – 18 year Adolescence - 19 – 40 year Young Adulthood - 41 – 60 year Adulthood - >60 year Elderly
Technical specs
CSV column name:
time_of_current_diagnosis_specify
Length:
100
Only when:
Required:
true
Mapping of the clinical building blocks (indicative only)
Concept:
be.en.hd.Problem
Data element:
ProblemStatusDate
Validation
- Time of current diagnosis: the format for date is DD/MM/YYYY (warning)
- Time of current diagnosis cannot be before the date of birth. If you want to register a prenatal diagnosis, please enter the gestational age. (warning)
- Time of current diagnosis cannot be a future date (warning)
- Time of current diagnosis: the format for month and year only is MM/YYYY (warning)
- Time of current diagnosis: the format for year only is YYYY (warning)
- Time of current diagnosis: maximum length of age range is 11 characters (warning)
- Time of current diagnosis: maximum length of gestational age is 11 characters (warning)
Date of current consultation
Help
The date of the current consultation in the registering centre.
Technical specs
Format:
DD/MM/YYYY
CSV column name:
date_of_current_consultation
Required:
true
Mapping of the clinical building blocks (indicative only)
Concept:
be.en.hd.Encounter
Data element:
StartDateTime
Validation
- Date of current consultation cannot be in the future (warning)
- Date of first consultation in the registering centre cannot be after the date of current consultation (warning)
- Date of current consultation cannot be before the date of birth (warning)
Country of current consultation
Help
The country code of the place of the current consultation.
Technical specs
CSV column name:
country_of_current_consultation
Length:
2
Reference list:
COUNTRY
Required:
true
Mapping of the clinical building blocks (indicative only)
Concept:
be.en.hd.HealthcareProvider
Data element:
Address::AddressInformation
Validation
- The city of current consultation does not contain a Belgian postal code, while the country of current consultation is equal to "BE" (warning)
- The city of current consultation contains a Belgian postal code, but the country of current consultation is different from "BE" (warning)
- Country of current consultation cannot be equal to '999' (warning)
City of current consultation
Help
The postcode of the place of the current consultation.
Technical specs
CSV column name:
city_of_current_consultation
Length:
100
Reference list:
POSTAL_CODE
Required:
true
Mapping of the clinical building blocks (indicative only)
Concept:
be.en.hd.HealthcareProvider
Data element:
Address::AddressInformation
Validation
- The city of current consultation does not contain a Belgian postal code, while the country of current consultation is equal to "BE" (warning)
- The city of current consultation contains a Belgian postal code, but the country of current consultation is different from "BE" (warning)
- City of current consultation cannot be equal to '999' (warning)
3 Diagnosis
Section help
Warning: Multiple codes can be used to describe one disease. If a patient has several rare diseases, please fill in different forms for this patient. In this way, it is possible to distinguish all the associated variables that are usually disease specific.
Time of first symptoms (first consultation)
Help
The time of first symptoms is the date, or best estimate thereof, when the patient went for the first time to see a physician for symptoms of his rare disease. Or, in the case of occasional findings or prenatal symptoms, it is the date when the disease manifestations (either subjective symptoms or objective signs) first came to the attention of a physician.
Technical specs
CSV column name:
time_of_first_symptoms_first_consultation
Required:
false
Options
| Label | Value |
| Full date | full_date |
| Only month and year | only_month_and_year |
| Only year | only_year |
| Age range | age_range |
| Gestational age | gestational_age |
| Unknown | unknown |
| No symptoms | no_symptoms |
Mapping of the clinical building blocks (indicative only)
Concept:
be.en.hd.Problem
Data element:
ProblemStartDate
Validation
- Time of first symptoms: the format for full date is DD/MM/YYYY (warning)
- Time of first symptoms cannot be before the date of birth. In case of prenatal symptoms, please provide the gestational age. (warning)
- Time of first symptoms cannot be a future date (warning)
- Time of first symptoms: the format for month and year only is MM/YYYY and cannot be in the future (warning)
- Time of first symptoms: the format for year only is YYYY and cannot be in the future (warning)
- Time of first symptoms: maximum length of age range is 11 characters (warning)
- Time of first symptoms: maximum length of gestational age is 11 characters (warning)
Time of first symptoms (first consultation): specify
Help
The answering possibilities are: for "full_date": dd/mm/yyyy for "month_and_year": mm/yyyy for "only_year": yyyy for "age_range": x-y for "gestational_age": x weeks for "unknown": unknown If an age range was chosen as a format, you can use the following categories but you are not obliged to use them. You can still type another age range, as long as the character "-" is in it, it will be accepted. If the symptoms were first detected during prenatal testing (ultrasound) the time must be registered in gestational weeks (semaines, weken or abbreviation). Age range categories: corresponding to age categories in Orphanet - 0 - 4 weeks Neonatal period - 4w – 2 year Infancy - 2 – 11 year Childhood - 12 – 18 year Adolescence - 19 – 40 year Young Adulthood - 41 – 60 year Adulthood - >60 year Elderly
Technical specs
CSV column name:
time_of_first_symptoms_first_consultation_specify
Length:
100
Only when:
Required:
true
Mapping of the clinical building blocks (indicative only)
Concept:
be.en.hd.Problem
Data element:
ProblemStartDate
Validation
- Time of first symptoms: the format for full date is DD/MM/YYYY (warning)
- Time of first symptoms cannot be before the date of birth. In case of prenatal symptoms, please provide the gestational age. (warning)
- Time of first symptoms cannot be a future date (warning)
- Time of first symptoms: the format for month and year only is MM/YYYY and cannot be in the future (warning)
- Time of first symptoms: the format for year only is YYYY and cannot be in the future (warning)
- Time of first symptoms: maximum length of age range is 11 characters (warning)
- Time of first symptoms: maximum length of gestational age is 11 characters (warning)
Status diagnosis
Help
The indication whether the status of the current diagnosis is provisional or definitive.
Technical specs
CSV column name:
status_diagnosis
Required:
true
Options
| Label | Value |
| Provisional diagnosis | provisional |
| Definitive diagnosis | definitive |
Mapping of the clinical building blocks (indicative only)
Concept:
be.en.hd.Problem
Data element:
ProblemStatus
Base of diagnosis
Help
The different elements on which the current diagnosis is based. All applicable options must be added.
Technical specs
CSV column name:
base_of_diagnosis
Required:
true
Options
| Label | Value |
| Clinical signs | clinical_signs |
| Family history | family_history |
| Genetic test | genetic_test |
| Other | other |
Nested option fields
- When other Is selected:text
Specify
Technical specs
CSV column name:
base_of_diagnosis|specify
Length:
250
Required:
false
Validation
- Base of diagnosis - Other - Specify: maximum length is 250 characters (warning)
Disease code
Help
Preference is given to the use of the Orphanet classification, because it is the most complete and accurate classification for rare diseases. But it is also possible to use other coding systems: ICD-10, SNOMED-CT, ICD-O, HPO, OMIM and ISCN. If multiple systems are used to describe the disease, different codes can be inserted in the respective fields. It is mandatory to fill in at least one of the following codes: ORPHA, ICD-10, SNOMED-CT, ICD-O, HPO, OMIM or ISCN. Warning: if a patient has several rare diseases, please fill in different records for this patient.
Fields
Section help
Preference is given to the use of the Orphanet classification, because it is the most complete and accurate classification for rare diseases. But it is also possible to use other coding systems: ICD-10, SNOMED-CT, ICD-O, HPO, OMIM and ISCN. If multiple systems are used to describe the disease, different codes can be inserted in the respective fields. It is mandatory to fill in at least one of the following codes: ORPHA, ICD-10, SNOMED-CT, ICD-O, HPO, OMIM or ISCN. Warning: if a patient has several rare diseases, please fill in different records for this patient.
Diagnosis: ORPHA-code
This is a container for multiple answers. See the reference documentation for more details. Below you can find the information about the fields of the container
Help
Provisional or definitive diagnosis described using the code assigned to the disease in the Orphanet classification. Multiple codes to describe one rare disease can be added. Preference is given to the use of the Orphanet classification. The word ORPHA is omitted. For example: Duchenne muscular dystrophy will get as code "98896."
Element conditions
| Message | Expression |
| ORPHA-code of disease: maximum length is 35 characters | typeof $.orphacode === 'string'?$.orphacode.length |
| ORPHA-code of disease: must be a number | typeof $.orphacode === 'string'?!isNaN($.orphacode):true |
Mapping of the clinical building blocks (indicative only)
Concept:
be.en.hd.Problem
Data element:
ProblemName
List items
Section help
Provisional or definitive diagnosis described using the code assigned to the disease in the Orphanet classification. Multiple codes to describe one rare disease can be added. Preference is given to the use of the Orphanet classification. The word ORPHA is omitted. For example: Duchenne muscular dystrophy will get as code "98896."
ORPHA-code
Technical specs
CSV column name:
disease_code|diagnosis_orphacode|orphacode
Length:
35
Reference list:
ORPHA
Required:
true
Mapping of the clinical building blocks (indicative only)
Concept:
be.en.hd.Problem
Data element:
ProblemName
Validation
- Code of the disease: it is mandatory to provide at least one of the following diagnosis codes: ORPHA, ICD-10, SNOMED-CT, ICD-O, HPO, OMIM or ISCN (warning)
Diagnosis: ICD-10-code
This is a container for multiple answers. See the reference documentation for more details. Below you can find the information about the fields of the container
Help
Provisional or definitive diagnosis described using the code assigned to the disease in the ICD-10 classification.
Element conditions
| Message | Expression |
| ICD-10-code of disease: maximum length is 35 characters | typeof $.icd10code === 'string'?$.icd10code.length |
List items
Section help
Provisional or definitive diagnosis described using the code assigned to the disease in the ICD-10 classification.
ICD-10-code
Technical specs
CSV column name:
disease_code|diagnosis_icd10code|icd10code
Length:
35
Reference list:
ICD10
Required:
true
Validation
- Code of the disease: it is mandatory to provide at least one of the following diagnosis codes: ORPHA, ICD-10, SNOMED-CT, ICD-O, HPO, OMIM or ISCN (warning)
Diagnosis: SNOMED-CT-code
This is a container for multiple answers. See the reference documentation for more details. Below you can find the information about the fields of the container
Help
Provisional or definitive diagnosis described using the code assigned to the disease in the SNOMED-CT nomenclature.
Element conditions
| Message | Expression |
| SNOMED-CT-code of disease: maximum length is 35 characters | typeof $.snomedctcode === 'string'?$.snomedctcode.length |
| SNOMED-CT-code of disease: must be a number | typeof $.snomedctcode === 'string'?!isNaN($.snomedctcode):true |
Mapping of the clinical building blocks (indicative only)
Concept:
be.en.hd.Problem
Data element:
ProblemName
List items
Section help
Provisional or definitive diagnosis described using the code assigned to the disease in the SNOMED-CT nomenclature.
SNOMED-CT-code
Technical specs
CSV column name:
disease_code|diagnosis_snomedctcode|snomedctcode
Length:
35
Required:
true
Validation
- Code of the disease: it is mandatory to provide at least one of the following diagnosis codes: ORPHA, ICD-10, SNOMED-CT, ICD-O, HPO, OMIM or ISCN (warning)
Diagnosis: ICD-O-code
This is a container for multiple answers. See the reference documentation for more details. Below you can find the information about the fields of the container
Help
Provisional or definitive diagnosis described using the code assigned to the disease in the ICD-O classification.
Element conditions
| Message | Expression |
| ICD-O-code of disease: maximum length is 35 characters | typeof $.icdocode === 'string'?$.icdocode.length |
Mapping of the clinical building blocks (indicative only)
Concept:
be.en.hd.Problem
Data element:
ProblemName
List items
Section help
Provisional or definitive diagnosis described using the code assigned to the disease in the ICD-O classification.
ICD-O-code
Technical specs
CSV column name:
disease_code|diagnosis_icdocode|icdocode
Length:
35
Required:
true
Validation
- Code of the disease: it is mandatory to provide at least one of the following diagnosis codes: ORPHA, ICD-10, SNOMED-CT, ICD-O, HPO, OMIM or ISCN (warning)
Diagnosis: HPO-code
This is a container for multiple answers. See the reference documentation for more details. Below you can find the information about the fields of the container
Help
Provisional or definitive diagnosis described using the HPO code assigned to the disease. The mark "HP" is omitted.
Element conditions
| Message | Expression |
| HPO-code of disease: maximum length is 35 characters | typeof $.hpocode === 'string'?$.hpocode.length |
| HPO-code of disease: must be a number | typeof $.hpocode === 'string'?!isNaN($.hpocode):true |
Mapping of the clinical building blocks (indicative only)
Concept:
be.en.hd.Problem
Data element:
ProblemName
List items
Section help
Provisional or definitive diagnosis described using the HPO code assigned to the disease. The mark "HP" is omitted.
HPO-code
Technical specs
CSV column name:
disease_code|diagnosis_hpocode|hpocode
Length:
35
Reference list:
HPO
Required:
true
Validation
- Code of the disease: it is mandatory to provide at least one of the following diagnosis codes: ORPHA, ICD-10, SNOMED-CT, ICD-O, HPO, OMIM or ISCN (warning)
Diagnosis: OMIM-code
This is a container for multiple answers. See the reference documentation for more details. Below you can find the information about the fields of the container
Help
Provisional or definitive diagnosis described using an OMIM code assigned to the disease.
Element conditions
| Message | Expression |
| OMIM-code of disease: maximum length is 35 characters | typeof $.omimcode === 'string'?$.omimcode.length |
| OMIM-code of disease: must be a number | typeof $.omimcode === 'string'?!isNaN($.omimcode):true |
Mapping of the clinical building blocks (indicative only)
Concept:
be.en.hd.Problem
Data element:
ProblemName
List items
Section help
Provisional or definitive diagnosis described using an OMIM code assigned to the disease.
OMIM-code
Technical specs
CSV column name:
disease_code|diagnosis_omimcode|omimcode
Length:
35
Required:
true
Validation
- Code of the disease: it is mandatory to provide at least one of the following diagnosis codes: ORPHA, ICD-10, SNOMED-CT, ICD-O, HPO, OMIM or ISCN (warning)
Diagnosis: ISCN-code
This is a container for multiple answers. See the reference documentation for more details. Below you can find the information about the fields of the container
Help
Provisional or definitive diagnosis described using the code assigned to the genotype in the ISCN nomenclature.
Element conditions
| Message | Expression |
| ISCN-code of disease: maximum length is 200 characters | typeof $.iscncode === 'string'?$.iscncode.length |
Mapping of the clinical building blocks (indicative only)
Concept:
be.en.hd.Problem
Data element:
ProblemName
List items
Section help
Provisional or definitive diagnosis described using the code assigned to the genotype in the ISCN nomenclature.
ISCN-code
Technical specs
CSV column name:
disease_code|diagnosis_iscncode|iscncode
Length:
200
Required:
true
Diagnosis: LOINC-code
This is a container for multiple answers. See the reference documentation for more details. Below you can find the information about the fields of the container
Help
Provisional or definitive diagnosis additionally described using the code assigned to a test and test result in the LOINC nomenclature.
Element conditions
| Message | Expression |
| LOINC-code of disease: maximum length is 200 characters | typeof $.loinccode === 'string'?$.loinccode.length |
Mapping of the clinical building blocks (indicative only)
Concept:
be.en.hd.Problem
Data element:
ProblemName
List items
Section help
Provisional or definitive diagnosis additionally described using the code assigned to a test and test result in the LOINC nomenclature.
LOINC-code
Technical specs
CSV column name:
disease_code|diagnosis_loinccode|loinccode
Length:
200
Required:
false
Diagnosis: Disease name
Help
The provisional or definitive diagnosis described in words using the name or a synonym of the disease in EN, FR or NL.
Technical specs
CSV column name:
disease_code|diagnosis_disease_name
Length:
200
Required:
true
Mapping of the clinical building blocks (indicative only)
Concept:
be.en.hd.Problem
Data element:
ProblemName
Validation
- Disease name: maximum length is 200 characters (warning)
4 Other
Referred to
Help
The health service or physician the patient is referred to.
Technical specs
CSV column name:
referred_to
Length:
200
Reference list:
CRRD_REFERRED_TO
Required:
false
Consent of patient for facilitation of recruitment
Help
The consent of the patient for facilitation of recruitment for clinical trials/research. One of the goals of the registry is to facilitate the recruitment for clinical studies of patients matching specific criteria. In this context, the registry will play a facilitating role but the patient will always be contacted through a treating clinician.
Technical specs
CSV column name:
consent_of_patient_for_facilitation_of_recruitment
Required:
hidden
Mapping of the clinical building blocks (indicative only)
Concept:
be.en.hd.TreatmentDirective
Data element:
TreatmentPermitted
Options
| Label | Value |
| Yes | TRUE |
| No | FALSE |
Comments
Help
Comments according to all the variables (if necessary).
Technical specs
CSV column name:
comments
Length:
500
Required:
false
Validation