Surveillance of Infectious diseases in Children by paediatricians and GP - Acute flaccid paralysis (Pedisurv_Acute_Flaccid_Paralysis)
- Status: active
- How to create a CSV file for this data collection?
- Start date: 30/05/2017
1 General information
Section help
Gevalsdefinitie AFP: Acuut klinisch beeld van focale slapheid of verlamming met verminderde tonus zonder duidelijk aanwijsbare oorzaak (zoals een trauma), bij kinderen onder de 15 jaar. Gelieve 2 stoelgangstalen af te nemen voor het uitsluiten van een enterovirus infectie. Ook wordt er gevraagd om een geval zo snel mogelijk te melden aan het WIV. Mogelijke oorzaken: - Acute anterior poliomyelitis door een poliovirus of een ander neurotroop virus (coxsachie virus, echovirus, ...) - Acute myelopathie: idiopatisch, paraspinaal abces, tumor of hematoom - Perifere neuropathie: - Syndroom van Guillain-Barré - Acute demyeliniserende neuropathie - Acute axonale neuropathie - Post-rabies vaccin - Neuropathie door infectieziekten (difterie, Lyme borreliose…) of intoxicaties - Systeemziekten: acute intermittente porphyrie - Stoornis van de neuromusculaire transmissie: myasthenia gravis, botulisme - Spieraandoeningen: idiopathische inflammatoire myopathie (polymyositis), trichinosis, hypokaliemische en hyperkaliemische paralyse
NIHDI number of the reporting physician
Technical specs
CSV column name:
nihdi_number_of_the_reporting_physician
Length:
100
Reference list:
PHYSICIAN
Required:
true
Mapping of the clinical building blocks (indicative only)
Concept:
be.en.hd.Caregiver
Data element:
CareGiverIdentificationNumber
Validation
- NIHDI number of the reporting physician: required field (warning) (warning)
National registry ID of the patient
Help
Please encode a social security identification number (SSIN). Please note that the patient ID is always pseudonymised before being transferred to Healthdata.
Technical specs
CSV column name:
patient_id
Required:
true
Mapping of the clinical building blocks (indicative only)
Concept:
be.en.hd.Patient
Data element:
PatientIdentificationNumber
Validation
The validity of the national register number is checked with the mod97 check.
Fields
Section help
Please encode a social security identification number (SSIN). Please note that the patient ID is always pseudonymised before being transferred to Healthdata.
Internal patient ID
Help
This field can be used to enter an internal ID or reference number. It is available for internal use only and is not transferred to Healthdata. If there is an integration between HD4DP and your organisation's patient administration system, additional patient identification information such as date of birth, sex and SSIN can be automatically enriched based on this internal patient ID. Please do not encode the social security identification number (SSIN) in this field. The SSIN must be encoded in the field 'National registry ID of the patient'.
Technical specs
CSV column name:
patient_id|internal_patient_id
Length:
50
Required:
false
Generated
Help
The patient_id|generated column can be set to 'TRUE' for an automatically generated patient_id.This column should only be added in case the patient_id is empty. If the column is set to 'TRUE', a patient_id is automatically generated based on the name, first name, date of birth and sex of the patient.
Technical specs
CSV column name:
patient_id|generated
Required:
false
Options
| Label | Value |
| Yes | TRUE |
| No | FALSE |
Name
Help
The name of the patient is never transferred to Healthdata and is available for your information only.
Technical specs
CSV column name:
patient_id|name
Length:
50
Required:
noSSIN(Needed only if no national register number is entered)
Mapping of the clinical building blocks (indicative only)
Concept:
be.en.hd.Patient
Data element:
LastName
First name
Help
The first name of the patient is never transferred and is available for your information only.
Technical specs
CSV column name:
patient_id|first_name
Length:
50
Required:
noSSIN(Needed only if no national register number is entered)
Mapping of the clinical building blocks (indicative only)
Concept:
be.en.hd.Patient
Data element:
FirstNames
Date of birth
Technical specs
Format:
DD/MM/YYYY
CSV column name:
patient_id|date_of_birth
Required:
true
Mapping of the clinical building blocks (indicative only)
Concept:
be.en.hd.Patient
Data element:
DateOfBirth
Validation
- Date of birth cannot be after date of death (error)
- The date of birth cannot be in the future (error)
Sex
Technical specs
CSV column name:
patient_id|sex
Required:
noSSIN(Needed only if no national register number is entered)
Options
| Label | Value |
| Male | M |
| Female | F |
| Unknown | U |
Mapping of the clinical building blocks (indicative only)
Concept:
be.en.hd.Patient
Data element:
Gender
Validation
- Sex: required field (warning) (warning)
Place of residence
Technical specs
CSV column name:
patient_id|place_of_residence
Length:
5
Reference list:
POSTAL_CODE
Required:
false
Mapping of the clinical building blocks (indicative only)
Concept:
be.en.hd.Patient
Data element:
Postcode
Deceased?
Technical specs
CSV column name:
patient_id|deceased
Required:
false
Mapping of the clinical building blocks (indicative only)
Concept:
be.en.hd.Patient
Data element:
DeathIndicator
Options
| Label | Value |
| Yes | TRUE |
| No | FALSE |
Date of death
Technical specs
Format:
DD/MM/YYYY
CSV column name:
patient_id|date_of_death
Only when:
Required:
false
Mapping of the clinical building blocks (indicative only)
Concept:
be.en.hd.Patient
Data element:
DateOfDeath
Validation
- Date of first symptoms cannot be after date of death (error)
- Admission date cannot be after date of death (error)
- Date of birth cannot be after date of death (error)
- Discharge date cannot be after date of death (error)
- Date of last vaccination cannot be after date of death (error)
- Sample date 1st sample cannot be after date of death (error)
- Sample date 2nd sample cannot be after date of death (error)
- Date of lumbar puncture cannot be after date of death (error)
- Date of EMG test cannot be after date of death (error)
- Date of follow up cannot be after date of death (error)
Cause of death
Technical specs
CSV column name:
cause_of_death
Length:
200
Only when:
Required:
false
Mapping of the clinical building blocks (indicative only)
Concept:
be.en.hd.TransferConcern
Data element:
ProblemName
2 Clinical information
Date of first symptoms
Technical specs
Format:
DD/MM/YYYY
CSV column name:
date_of_first_symptoms
Required:
false
Mapping of the clinical building blocks (indicative only)
Concept:
be.en.hd.TransferConcern
Data element:
ProblemStartDate
Validation
- Date of first symptoms cannot be after date of death (error)
Symptoms
Help
Please complete all
Technical specs
Required:
false
Mapping of the clinical building blocks (indicative only)
Concept:
be.en.hd.TransferConcern
Data element:
ProblemType
Validation
- Date of first symptoms cannot be after date of death (error)
Questions
| Label | CSV column name |
| Paralysis of the limbs | paralysis_of_the_limbs |
| Bulbar paralysis | bulbar_paralysis |
| Facial paralysis | facial_paralysis |
| Meningeal irritation | meningeal_irritation |
| Sensory deficits | sensory_deficits |
| Fever (at the start of the paralysis) | fever_at_the_start_of_the_paralysis |
| Progression of paralysis in less than 4 days | progression_of_paralysis_in_less_than_4_days |
| Asymmetric paralysis | asymmetric_paralysis |
Answers
| Label | Value |
| Yes | 1 |
| No | 0 |
| Unknown | 9 |
Other symptoms please specify
Technical specs
CSV column name:
other_symptoms_please_specify
Length:
200
Required:
false
Mapping of the clinical building blocks (indicative only)
Concept:
be.en.hd.TransferConcern
Data element:
ProblemName
Diagnosis made
Help
Multiple answers are possible
Technical specs
CSV column name:
diagnosis_made
Required:
false
Options
| Label | Value |
| Peripheral neuropathy | peripheral_neuropathy |
| Anterior horn cell disease | anterior_horn_cell_disease |
| Acute myelopathy | acute_myelopathy |
| Muscle disorders | muscle_disorders |
| Systemic disease | systemic_disease |
| Disorders of neuromuscular transmission | disorders_of_neuromuscular_transmission |
| Other | other |
Mapping of the clinical building blocks (indicative only)
Concept:
be.en.hd.TransferConcern
Data element:
ProblemName
Nested option fields
- When peripheral_neuropathy Is selected:multichoice
Specify peripheral neuropathy
Technical specs
CSV column name:
diagnosis_made|specify_peripheral_neuropathy
Required:
false
Options
Label Value Guillain-Barré syndrome (acute post- infectious polyneuropathy) guillainbarré_syndrome_acute_post_infectious_polyneuropathy Acute axonal neuropathy acute_axonal_neuropathy Neuropathies of infectious diseases neuropathies_of_infectious_diseases Acute toxic neuropathies( heavy metals) acute_toxic_neuropathies_heavy_metals Focal mononeuropathy focal_mononeuropathy Mapping of the clinical building blocks (indicative only)
Concept:
be.en.hd.TransferConcern
Data element:
ProblemName
- When anterior_horn_cell_disease Is selected:multichoice
Specify anterior horn cell disease
Technical specs
CSV column name:
diagnosis_made|specify_anterior_horn_cell_disease
Required:
false
Options
Label Value Acute poliomyelitis acute_poliomyelitis Vaccine-associated poliomyelitis vaccineassociated_poliomyelitis Other neurotropic viruses other_neurotropic_viruses Mapping of the clinical building blocks (indicative only)
Concept:
be.en.hd.TransferConcern
Data element:
ProblemName
- When acute_myelopathy Is selected:multichoice
Specify acute myelopathy
Technical specs
CSV column name:
diagnosis_made|specify_acute_myelopathy
Required:
false
Options
Label Value Transverse myelitis transverse_myelitis Acute disseminated encephalomyelitis (ADEM) acute_disseminated_encephalomyelitis_adem Spinal cord ischaemia spinal_cord_ischaemia Spinal cord injury or compression eg.Tumour, trauma spinal_cord_injury_or_compression_egtumour_trauma Peri-operative complication perioperative_complication Mapping of the clinical building blocks (indicative only)
Concept:
be.en.hd.TransferConcern
Data element:
ProblemName
- When muscle_disorders Is selected:multichoice
Specify muscle disorders
Technical specs
CSV column name:
diagnosis_made|specify_muscle_disorders
Required:
false
Options
Label Value Polymyositis (e.g. dermatomyositis) polymyositis Periodic paralyses periodic_paralyses Mitochondrial diseases (infantile type) mitochondrial_diseases_infantile_type Viral myositis viral_myositis Drug-induced paralysis druginduced_paralysis Mapping of the clinical building blocks (indicative only)
Concept:
be.en.hd.TransferConcern
Data element:
ProblemName
Nested option fields
- When druginduced_paralysis Is selected:text
Specify
Technical specs
CSV column name:
diagnosis_made|specify_muscle_disorders|specify
Length:
200
Required:
false
Mapping of the clinical building blocks (indicative only)
Concept:
be.en.hd.TransferConcern
Data element:
ProblemName
- When druginduced_paralysis Is selected:
- When systemic_disease Is selected:multichoice
Specify systemic disease
Technical specs
CSV column name:
diagnosis_made|specify_systemic_disease
Required:
false
Options
Label Value Acute porphyria acute_porphyria Critical illness neuropathy/myopathy critical_illness_neuropathymyopathy Conversion disorder conversion_disorder Mapping of the clinical building blocks (indicative only)
Concept:
be.en.hd.TransferConcern
Data element:
ProblemName
- When disorders_of_neuromuscular_transmission Is selected:multichoice
Specify disorders of neuromuscular transmission
Technical specs
CSV column name:
diagnosis_made|specify_disorders_of_neuromuscular_transmission
Required:
false
Options
Label Value Botulism botulism Insecticide e.g: organophosphate poisoning insecticide_eg_organophosphate_poisoning Tick bite paralysis tick_bite_paralysis Myasthenia gravis myasthenia_gravis Mapping of the clinical building blocks (indicative only)
Concept:
be.en.hd.TransferConcern
Data element:
ProblemName
- When other Is selected:text
Specify other
Technical specs
CSV column name:
diagnosis_made|specify_other
Length:
200
Required:
false
Mapping of the clinical building blocks (indicative only)
Concept:
be.en.hd.TransferConcern
Data element:
ProblemName
Validation
- Diagnosis made: required field (warning) (warning)
- Specify peripheral neuropathy: required field (warning) (warning)
- Specify anterior horn cell disease: required field (warning) (warning)
- Specify acute myelopathy: required field (warning) (warning)
- Specify muscle disorders: required field (warning) (warning)
- Specify: required field (warning) (warning)
- Specify systemic disease: required field (warning) (warning)
- Specify disorders of neuromuscular transmission: required field (warning) (warning)
- Specify other: required field (warning) (warning)
3 Hospitalisation
Admission date
Technical specs
Format:
DD/MM/YYYY
CSV column name:
admission_date
Required:
false
Mapping of the clinical building blocks (indicative only)
Concept:
be.en.hd.Contact
Data element:
StartDateTime
Validation
- Admission date cannot be after discharge date (error)
- Admission date cannot be after date of death (error)
Discharge date
Technical specs
Format:
DD/MM/YYYY
CSV column name:
discharge_date
Required:
false
Mapping of the clinical building blocks (indicative only)
Concept:
be.en.hd.Contact
Data element:
EndDateTime
Validation
- Admission date cannot be after discharge date (error)
- Discharge date cannot be after date of death (error)
4 Vaccination
Has the patient been vaccinated against poliomyelitis?
Technical specs
CSV column name:
has_the_patient_been_vaccinated_against_poliomyelitis
Required:
false
Options
| Label | Value |
| Yes | 1 |
| No | 0 |
| Unknown | 9 |
Mapping of the clinical building blocks (indicative only)
Concept:
be.en.hd.Vaccination
Data element:
ProductCode
Validation
- Date of last vaccination cannot be after date of death (error)
Nested option fields
- When 1 Is selected:choice
Number of doses received
Technical specs
CSV column name:
has_the_patient_been_vaccinated_against_poliomyelitis|number_of_doses_received
Required:
false
Options
Label Value 1 1 2 2 3 3 4 4 Unknown 9 Mapping of the clinical building blocks (indicative only)
Concept:
be.en.hd.Vaccination
Data element:
Dose
dateDate of last vaccination
Technical specs
Format:
DD/MM/YYYY
CSV column name:
has_the_patient_been_vaccinated_against_poliomyelitis|date_of_last_vaccination
Required:
false
Mapping of the clinical building blocks (indicative only)
Concept:
be.en.hd.Vaccination
Data element:
VaccinationDate
choiceIs the vaccination documented (card/file/register/...)?
Technical specs
CSV column name:
has_the_patient_been_vaccinated_against_poliomyelitis|is_the_vaccination_documented_cardfileregister
Required:
false
Options
Label Value Yes 1 No 0 Unknown 9 - When 0 Is selected:choice
Why was the patient not vaccinated against poliomyelitis?
Technical specs
CSV column name:
has_the_patient_been_vaccinated_against_poliomyelitis|why_was_the_patient_not_vaccinated_against_poliomyelitis
Required:
false
Options
Label Value Too young for vaccination 1 Forgotten 2 Anti-vaccine 3 Contra-indicated (disease, allergy, ...) 4 Fear, mistrust 5 Lack of information 6 No access to vaccine in country of origin 7 Unknown 9 Other 10 Nested option fields
- When 10 Is selected:text
Specify
Technical specs
CSV column name:
has_the_patient_been_vaccinated_against_poliomyelitis|why_was_the_patient_not_vaccinated_against_poliomyelitis|specify
Length:
200
Required:
false
- When 10 Is selected:
5 Laboratory investigation
Was a virological examination performed on faeces samples?
Technical specs
CSV column name:
was_a_virological_examination_performed_on_faeces_samples
Required:
false
Options
| Label | Value |
| Yes | 1 |
| No | 0 |
| Unknown | 9 |
Mapping of the clinical building blocks (indicative only)
Concept:
be.en.hd.TransferLaboratoryResult
Data element:
ResultType
Validation
- Was a virological examination performed on faeces samples?: required field (warning) (warning)
- Result: required field (warning) (warning)
- Result: required field (warning) (warning)
Sample 1
Fields
Sample date
Technical specs
Format:
DD/MM/YYYY
CSV column name:
sample_1|sample_date
Required:
false
Mapping of the clinical building blocks (indicative only)
Concept:
be.en.hd.TransferLaboratoryResult
Data element:
DrawingDateTime
Validation
- Sample date 1st sample cannot be after date of death (error)
Result
Technical specs
CSV column name:
sample_1|result
Required:
false
Options
| Label | Value |
| Negative | 0 |
| Positive | 1 |
| Unknown | 9 |
Mapping of the clinical building blocks (indicative only)
Concept:
be.en.hd.TransferLaboratoryResult
Data element:
Result
Validation
- Result: required field (warning) (warning)
Nested option fields
- When 1 Is selected:text
Specify
Technical specs
CSV column name:
sample_1|result|specify
Length:
200
Required:
false
Mapping of the clinical building blocks (indicative only)
Concept:
be.en.hd.TransferLaboratoryResult
Data element:
Result
Sample 2
Fields
Sample date
Technical specs
Format:
DD/MM/YYYY
CSV column name:
sample_2|sample_date
Required:
false
Mapping of the clinical building blocks (indicative only)
Concept:
be.en.hd.TransferLaboratoryResult
Data element:
DrawingDateTime
Validation
- Sample date 2nd sample cannot be after date of death (error)
Result
Technical specs
CSV column name:
sample_2|result
Required:
false
Options
| Label | Value |
| Negative | 0 |
| Positive | 1 |
| Unknown | 9 |
Mapping of the clinical building blocks (indicative only)
Concept:
be.en.hd.TransferLaboratoryResult
Data element:
Result
Validation
- Result: required field (warning) (warning)
Nested option fields
- When 1 Is selected:text
Specify
Technical specs
CSV column name:
sample_2|result|specify
Length:
200
Required:
false
Was a lumbar puncture done?
Technical specs
CSV column name:
was_a_lumbar_puncture_done
Required:
false
Options
| Label | Value |
| Yes | 1 |
| No | 0 |
| Unknown | 9 |
Mapping of the clinical building blocks (indicative only)
Concept:
be.en.hd.TransferLaboratoryResult
Data element:
DrawingProcedure
Validation
- Date of lumbar puncture cannot be after date of death (error)
Nested option fields
- When 1 Is selected:date
Sample date
Technical specs
Format:
DD/MM/YYYY
CSV column name:
was_a_lumbar_puncture_done|sample_date
Required:
false
Mapping of the clinical building blocks (indicative only)
Concept:
be.en.hd.TransferLaboratoryResult
Data element:
DrawingDateTime
multichoiceResult
Technical specs
CSV column name:
was_a_lumbar_puncture_done|result
Required:
false
Options
Label Value Number of lymphocytes number_of_lymphocytes Protein (mg/dl) protein_mgdl Pathogen pathogen Unknown unknown Mapping of the clinical building blocks (indicative only)
Concept:
be.en.hd.TransferLaboratoryResult
Data element:
Result
Nested option fields
- When number_of_lymphocytes Is selected:text
Specify
Technical specs
CSV column name:
was_a_lumbar_puncture_done|result|specify
Length:
200
Required:
false
Mapping of the clinical building blocks (indicative only)
Concept:
be.en.hd.TransferLaboratoryResult
Data element:
Result
- When protein_mgdl Is selected:text
Specify
Technical specs
CSV column name:
was_a_lumbar_puncture_done|result|specify_1
Length:
200
Required:
false
Mapping of the clinical building blocks (indicative only)
Concept:
be.en.hd.TransferLaboratoryResult
Data element:
Result
- When pathogen Is selected:text
Please specify
Technical specs
CSV column name:
was_a_lumbar_puncture_done|result|please_specify
Required:
false
- When number_of_lymphocytes Is selected:
Was an EMG test performed?
Technical specs
CSV column name:
was_an_emg_test_performed
Required:
false
Options
| Label | Value |
| Yes | 1 |
| No | 0 |
| Unknown | 9 |
Mapping of the clinical building blocks (indicative only)
Concept:
be.en.hd.TransferTextResult
Data element:
TextResultType
Validation
- Date of EMG test cannot be after date of death (error)
Nested option fields
- When 1 Is selected:date
Date of test
Technical specs
Format:
DD/MM/YYYY
CSV column name:
was_an_emg_test_performed|date_of_test
Required:
false
Mapping of the clinical building blocks (indicative only)
Concept:
be.en.hd.TransferTextResult
Data element:
TextResultDateTime
textResult
Technical specs
CSV column name:
was_an_emg_test_performed|result
Length:
200
Required:
false
Mapping of the clinical building blocks (indicative only)
Concept:
be.en.hd.TransferTextResult
Data element:
TextResult
6 Possible source of infection
Did the patient recently stay abroad?
Technical specs
CSV column name:
did_the_patient_recently_stay_abroad
Required:
false
Options
| Label | Value |
| Yes | 1 |
| No | 0 |
| Unknown | 9 |
Nested option fields
- When 1 Is selected:text
Where?
Technical specs
CSV column name:
did_the_patient_recently_stay_abroad|where
Length:
200
Reference list:
COUNTRY
Required:
false
7 Follow up information (60-90 days after onset of disease)
Date of follow up
Technical specs
Format:
DD/MM/YYYY
CSV column name:
date_of_follow_up
Only when:
Required:
false
Mapping of the clinical building blocks (indicative only)
Concept:
be.en.hd.TransferPlannedCareActivity
Data element:
StartDate
Validation
- Date of follow up cannot be after date of death (error)
Does the patient have any residual paralysis?
Technical specs
CSV column name:
does_the_patient_have_any_residual_paralysis
Only when:
Required:
false
Options
| Label | Value |
| Yes | 1 |
| No | 0 |
| Unknown | 9 |
Mapping of the clinical building blocks (indicative only)
Concept:
be.en.hd.TransferConcern
Data element:
ProblemName
Nested option fields
- When 1 Is selected:multichoice
Specify level
Technical specs
CSV column name:
does_the_patient_have_any_residual_paralysis|specify_level
Required:
false
Options
Label Value Sensory sensory Motor motor Mapping of the clinical building blocks (indicative only)
Concept:
be.en.hd.TransferConcern
Data element:
ProblemName
Comments
Technical specs
CSV column name:
comments
Length:
400
Only when:
Required:
false