Surveillance of Infectious diseases in Children by paediatricians and GP - Invasive pneumococcal disease (Pedisurv_Invasive_Pneumococcal_Disease)
- Status: active
- How to create a CSV file for this data collection?
- Start date: 30/05/2017
1 General information
Section help
Gevalsdefinitie van een invasieve pneumokokken infectie: - Kind van 0 tot 15 jaar oud - Isolatie van S. pneumoniae met cultuur of detectie door opsporing van het nucleïnezuur (PCR), uit een normaal steriel lichaamsvocht zoals bloed, cerebrospinaal-, pleuraal-, peritoneaal-, pericard- of gewrichts- vocht ⇒ Ter herinnering: vaccinatiestatus gekend?
NIHDI number of the reporting physician
Technical specs
CSV column name:
nihdi_number_of_the_reporting_physician
Length:
100
Reference list:
PHYSICIAN
Required:
true
Mapping of the clinical building blocks (indicative only)
Concept:
be.en.hd.HealthcareProvider
Data element:
HealthcareProviderIdentificationNumber
Validation
- NIHDI number of the reporting physician: required field (warning) (warning)
National registry ID of the patient
Help
Please encode a social security identification number (SSIN). Please note that the patient ID is always pseudonymised before being transferred to Healthdata.
Technical specs
CSV column name:
patient_id
Required:
true
Mapping of the clinical building blocks (indicative only)
Concept:
be.en.hd.Patient
Data element:
PatientIdentificationNumber
Validation
The validity of the national register number is checked with the mod97 check.
Fields
Section help
Please encode a social security identification number (SSIN). Please note that the patient ID is always pseudonymised before being transferred to Healthdata.
Internal patient ID
Help
This field can be used to enter an internal ID or reference number. It is available for internal use only and is not transferred to Healthdata. If there is an integration between HD4DP and your organisation's patient administration system, additional patient identification information such as date of birth, sex and SSIN can be automatically enriched based on this internal patient ID. Please do not encode the social security identification number (SSIN) in this field. The SSIN must be encoded in the field 'National registry ID of the patient'.
Technical specs
CSV column name:
patient_id|internal_patient_id
Length:
50
Required:
false
Generated
Help
The patient_id|generated column can be set to 'TRUE' for an automatically generated patient_id.This column should only be added in case the patient_id is empty. If the column is set to 'TRUE', a patient_id is automatically generated based on the name, first name, date of birth and sex of the patient.
Technical specs
CSV column name:
patient_id|generated
Required:
false
Options
| Label | Value |
| Yes | TRUE |
| No | FALSE |
Name
Help
The name of the patient is never transferred to Healthdata and is available for your information only.
Technical specs
CSV column name:
patient_id|name
Length:
50
Required:
noSSIN(Needed only if no national register number is entered)
Mapping of the clinical building blocks (indicative only)
Concept:
be.en.hd.Patient
Data element:
LastName
First name
Help
The first name of the patient is never transferred and is available for your information only.
Technical specs
CSV column name:
patient_id|first_name
Length:
50
Required:
noSSIN(Needed only if no national register number is entered)
Mapping of the clinical building blocks (indicative only)
Concept:
be.en.hd.Patient
Data element:
FirstNames
Date of birth
Technical specs
Format:
DD/MM/YYYY
CSV column name:
patient_id|date_of_birth
Required:
true
Mapping of the clinical building blocks (indicative only)
Concept:
be.en.hd.Patient
Data element:
DateOfBirth
Validation
- Date of birth cannot be after date of death (error)
- The date of birth cannot be in the future (error)
Sex
Technical specs
CSV column name:
patient_id|sex
Required:
noSSIN(Needed only if no national register number is entered)
Options
| Label | Value |
| Male | M |
| Female | F |
| Unknown | U |
Mapping of the clinical building blocks (indicative only)
Concept:
be.en.hd.Patient
Data element:
Gender
Validation
- Sex: required field (warning) (warning)
Place of residence
Technical specs
CSV column name:
patient_id|place_of_residence
Length:
5
Reference list:
POSTAL_CODE
Required:
false
Mapping of the clinical building blocks (indicative only)
Concept:
be.en.hd.Patient
Data element:
Postcode
Deceased?
Technical specs
CSV column name:
patient_id|deceased
Required:
false
Mapping of the clinical building blocks (indicative only)
Concept:
be.en.hd.Patient
Data element:
DeathIndicator
Options
| Label | Value |
| Yes | TRUE |
| No | FALSE |
Date of death
Technical specs
Format:
DD/MM/YYYY
CSV column name:
patient_id|date_of_death
Only when:
Required:
false
Mapping of the clinical building blocks (indicative only)
Concept:
be.en.hd.Patient
Data element:
DateOfDeath
Validation
- Date of birth cannot be after date of death (error)
- Admission date cannot be after date of death (error)
- Discharge date cannot be after date of death (error)
- Vaccination date of most recent dose cannot be after date of death (error)
- Vaccination date 1st dose cannot be after date of death (error)
- Vaccination date 2nd dose cannot be after date of death (error)
- Vaccination date 3rd dose cannot be after date of death (error)
- Vaccination date 4th dose cannot be after date of death (error)
- Sample date cannot be after date of death (error)
- Date of final diagnosis cannot be after date of death (error)
Cause of death
Technical specs
CSV column name:
cause_of_death
Length:
200
Only when:
Required:
false
Mapping of the clinical building blocks (indicative only)
Concept:
be.en.hd.TransferConcern
Data element:
ProblemName
2 Clinical information
Clinical category
Technical specs
CSV column name:
clinical_category
Required:
false
Options
| Label | Value |
| Primary bacteraemia | primary_bacteraemia |
| Uncomplicated pneumonia | uncomplicated_pneumonia |
| Complicated pneumonia | complicated_pneumonia |
| Meningitis | meningitis |
| Septic shock | septic_shock |
| Pneumococcal infectious disease | pneumococcal_infectious_disease |
Nested option fields
- When complicated_pneumonia Is selected:multichoice
Specify
Technical specs
CSV column name:
clinical_category|specify
Required:
false
Options
Label Value Pleural effusion pleural_effusion Pleural empyema pleural_empyema Abces or necrosis abces_or_necrosis Mapping of the clinical building blocks (indicative only)
Concept:
be.en.hd.TransferConcern
Data element:
ProblemType
- When pneumococcal_infectious_disease Is selected:choice
Specify
Technical specs
CSV column name:
clinical_category|specify_1
Required:
false
Options
Label Value Pneumococcal arthritis 36309003 Pneumococcal peritonitis 58710009 Pneumococcal pericarditis 194916007 Pneumococcal cellulitis 128045006 Other 10 Mapping of the clinical building blocks (indicative only)
Concept:
be.en.hd.TransferConcern
Data element:
ProblemName
Nested option fields
- When 10 Is selected:text
Specify other
Technical specs
CSV column name:
clinical_category|specify_1|specify_other
Length:
200
Required:
false
Mapping of the clinical building blocks (indicative only)
Concept:
be.en.hd.TransferConcern
Data element:
ProblemName
- When 10 Is selected:
Validation
- Clinical category: required field (warning) (warning)
- Clinical category - complicated pneumonia (specify): required field (warning) (warning)
- Clinical category - other invasive infection (specify): required field (warning) (warning)
- Clinical category - other invasive infection (specify other): required field (warning) (warning)
Infiltrate on Rx thorax
Technical specs
CSV column name:
infiltrate_on_rx_thorax
Required:
false
Options
| Label | Value |
| Yes | 1 |
| No | 0 |
| No Rx thorax | 2 |
Mapping of the clinical building blocks (indicative only)
Concept:
be.en.hd.TransferTextResult
Data element:
TextResult
Were there any complications?
Technical specs
CSV column name:
were_there_any_complications
Required:
false
Options
| Label | Value |
| Yes | 1 |
| No | 0 |
| Unknown | 9 |
Mapping of the clinical building blocks (indicative only)
Concept:
be.en.hd.TransferConcern
Data element:
ProblemName
Nested option fields
- When 1 Is selected:multichoice
Specify
Technical specs
CSV column name:
were_there_any_complications|specify
Required:
false
Options
Label Value Hearing loss hearing_loss Mental retardation mental_retardation Seizures seizures Delayed motor development delayed_motor_development Visual impairment visual_impairment Other other Mapping of the clinical building blocks (indicative only)
Concept:
be.en.hd.TransferConcern
Data element:
ProblemName
Nested option fields
- When other Is selected:text
Specify
Technical specs
CSV column name:
were_there_any_complications|specify|specify
Length:
200
Required:
false
Mapping of the clinical building blocks (indicative only)
Concept:
be.en.hd.TransferConcern
Data element:
ProblemName
- When other Is selected:
3 Hospitalisation
Admission date
Technical specs
Format:
DD/MM/YYYY
CSV column name:
admission_date
Required:
false
Mapping of the clinical building blocks (indicative only)
Concept:
be.en.hd.Contact
Data element:
StartDateTime
Validation
- Admission date cannot be after date of death (error)
- Admission date cannot be after discharge date (error)
Discharge date
Technical specs
Format:
DD/MM/YYYY
CSV column name:
discharge_date
Required:
false
Mapping of the clinical building blocks (indicative only)
Concept:
be.en.hd.Contact
Data element:
EndDateTime
Validation
- Discharge date cannot be after date of death (error)
- Admission date cannot be after discharge date (error)
4 Vaccination
Was the patient vaccinated with the Pneumococcal Polysacharride Vaccine (PPV23 - Pneumovax 23)?
Technical specs
CSV column name:
was_the_patient_vaccinated_with_the_pneumococcal_polysacharride_vaccine_ppv23__pneumovax_23
Required:
false
Options
| Label | Value |
| Yes | 1 |
| No | 0 |
| Unknown | 9 |
Mapping of the clinical building blocks (indicative only)
Concept:
be.en.hd.Vaccination
Data element:
ProductCode
Validation
- Vaccination date of most recent dose cannot be after date of death (error)
- Was the patient vaccinated with PPV?: required field (warning) (warning)
Nested option fields
- When 1 Is selected:date
Vaccination date of most recent dose
Technical specs
Format:
DD/MM/YYYY
CSV column name:
was_the_patient_vaccinated_with_the_pneumococcal_polysacharride_vaccine_ppv23__pneumovax_23|vaccination_date_of_most_recent_dose
Required:
false
Mapping of the clinical building blocks (indicative only)
Concept:
be.en.hd.Vaccination
Data element:
VaccinationDate
Was the patient vaccinated with a Pneumococcal Conjugated Vaccine (PCV)
Technical specs
CSV column name:
was_the_patient_vaccinated_with_a_pneumococcal_conjugated_vaccine_pcv
Required:
false
Options
| Label | Value |
| Yes | 1 |
| No | 0 |
| Unknown | 9 |
Mapping of the clinical building blocks (indicative only)
Concept:
be.en.hd.Vaccination
Data element:
ProductCode
Validation
- Was the patient vaccinated with PCV?: required field (warning) (warning)
- PCV 1st dose - vaccin type: required field (warning) (warning)
- PCV 2nd dose - vaccin type: required field (warning) (warning)
- PCV 3rd dose - vaccin type: required field (warning) (warning)
- PCV 4th dose - vaccin type: required field (warning) (warning)
PCV 1st dose
Fields
Vaccin type
Technical specs
CSV column name:
pcv_1st_dose|vaccin_type
Required:
false
Options
| Label | Value |
| 10-valent PCV (Synflorix) | PCV10 |
| 13-valent PCV (Prevenar 13) | PCV13 |
| 7-valent PCV (Prevenar) | PCV7 |
| Not administrated | 8 |
Mapping of the clinical building blocks (indicative only)
Concept:
be.en.hd.Vaccination
Data element:
ProductCode
Validation
- PCV 1st dose - vaccin type: required field (warning) (warning)
Vaccination date
Technical specs
Format:
DD/MM/YYYY
CSV column name:
pcv_1st_dose|vaccination_date
Required:
false
Mapping of the clinical building blocks (indicative only)
Concept:
be.en.hd.Vaccination
Data element:
VaccinationDate
Validation
- Vaccination date 1st dose cannot be after date of death (error)
- Vaccination date 1st dose cannot be after vaccination date 2nd dose (error)
- Vaccination date 1st dose needs to filled in before adding Vaccination date 2nd dose (error)
PCV 2nd dose
Fields
Vaccin type
Technical specs
CSV column name:
pcv_2nd_dose|vaccin_type
Required:
false
Options
| Label | Value |
| 10-valent PCV (Synflorix) | PCV10 |
| 13-valent PCV (Prevenar 13) | PCV13 |
| 7-valent PCV (Prevenar) | PCV7 |
| Not administrated | 8 |
Mapping of the clinical building blocks (indicative only)
Concept:
be.en.hd.Vaccination
Data element:
ProductCode
Validation
- PCV 2nd dose - vaccin type: required field (warning) (warning)
Vaccination date
Technical specs
Format:
DD/MM/YYYY
CSV column name:
pcv_2nd_dose|vaccination_date
Required:
false
Mapping of the clinical building blocks (indicative only)
Concept:
be.en.hd.Vaccination
Data element:
VaccinationDate
Validation
- Vaccination date 2nd dose cannot be after date of death (error)
- Vaccination date 1st dose cannot be after vaccination date 2nd dose (error)
- Vaccination date 2nd dose cannot be after vaccination date 3rd dose (error)
- Vaccination date 1st dose needs to filled in before adding Vaccination date 2nd dose (error)
- Vaccination date 2nd dose needs to filled in before adding Vaccination date 3rd dose (error)
PCV 3rd dose
Fields
Vaccin type
Technical specs
CSV column name:
pcv_3rd_dose|vaccin_type
Required:
false
Options
| Label | Value |
| 10-valent PCV (Synflorix) | PCV10 |
| 13-valent PCV (Prevenar 13) | PCV13 |
| 7-valent PCV (Prevenar) | PCV7 |
| Not administrated | 8 |
Mapping of the clinical building blocks (indicative only)
Concept:
be.en.hd.Vaccination
Data element:
ProductCode
Validation
- PCV 3rd dose - vaccin type: required field (warning) (warning)
Vaccination date
Technical specs
Format:
DD/MM/YYYY
CSV column name:
pcv_3rd_dose|vaccination_date
Required:
false
Mapping of the clinical building blocks (indicative only)
Concept:
be.en.hd.Vaccination
Data element:
VaccinationDate
Validation
- Vaccination date 3rd dose cannot be after date of death (error)
- Vaccination date 2nd dose cannot be after vaccination date 3rd dose (error)
- Vaccination date 3rd dose cannot be after vaccination date 4th dose (error)
- Vaccination date 2nd dose needs to filled in before adding Vaccination date 3rd dose (error)
- Vaccination date 3rd dose needs to filled in before adding Vaccination date 4th dose (error)
PCV 4th dose
Fields
Vaccin type
Technical specs
CSV column name:
pcv_4th_dose|vaccin_type
Required:
false
Options
| Label | Value |
| 10-valent PCV (Synflorix) | PCV10 |
| 13-valent PCV (Prevenar 13) | PCV13 |
| 7-valent PCV (Prevenar) | PCV7 |
| Not administrated | 8 |
Mapping of the clinical building blocks (indicative only)
Concept:
be.en.hd.Vaccination
Data element:
ProductCode
Validation
- PCV 4th dose - vaccin type: required field (warning) (warning)
Vaccination date
Technical specs
Format:
DD/MM/YYYY
CSV column name:
pcv_4th_dose|vaccination_date
Required:
false
Mapping of the clinical building blocks (indicative only)
Concept:
be.en.hd.Vaccination
Data element:
VaccinationDate
Validation
- Vaccination date 4th dose cannot be after date of death (error)
- Vaccination date 3rd dose cannot be after vaccination date 4th dose (error)
- Vaccination date 3rd dose needs to filled in before adding Vaccination date 4th dose (error)
5 Laboratory investigation
Sample date
Technical specs
Format:
DD/MM/YYYY
CSV column name:
sample_date
Required:
false
Mapping of the clinical building blocks (indicative only)
Concept:
be.en.hd.TransferLaboratoryResult
Data element:
DrawingDateTime
Validation
- Sample date cannot be after date of death (error)
Sample type
Technical specs
CSV column name:
sample_type
Required:
false
Options
| Label | Value |
| Blood | blood |
| Cerebrospinal fluid | cerebrospinal_fluid |
| Joint fluid | joint_fluid |
| Peritoneal fluid | peritoneal_fluid |
| Pleural fluid | pleural_fluid |
| Other (any other sterile site) | other_any_other_sterile_site |
Mapping of the clinical building blocks (indicative only)
Concept:
be.en.hd.TransferLaboratoryResult
Data element:
SpecimenMaterial
Test result
Technical specs
CSV column name:
test_result
Required:
false
Options
| Label | Value |
| Positive culture | positive_culture |
| Detection of nucleic acid (PCR or other technique) | detection_of_nucleic_acid_pcr_or_other_technique |
Mapping of the clinical building blocks (indicative only)
Concept:
be.en.hd.TransferLaboratoryResult
Data element:
Result
Was sample sent to the reference lab?
Technical specs
CSV column name:
was_sample_sent_to_the_reference_lab
Required:
true
Options
| Label | Value |
| Yes | 1 |
| No | 0 |
| Unknown | 9 |
Mapping of the clinical building blocks (indicative only)
Concept:
be.en.hd.TransferPlannedCareActivity
Data element:
OrderType
Serotype (if known)
Technical specs
CSV column name:
serotype_if_known
Length:
200
Reference list:
IPD_SEROTYPE
Required:
false
Mapping of the clinical building blocks (indicative only)
Concept:
be.en.hd.TransferLaboratoryResult
Data element:
Result
6 Underlying causes or prior illnesses
Are there any risk factors?
Technical specs
CSV column name:
are_there_any_risk_factors
Required:
false
Options
| Label | Value |
| Yes | 1 |
| No | 0 |
| Unknown | 9 |
Nested option fields
- When 1 Is selected:multichoice
Which ones
Technical specs
CSV column name:
are_there_any_risk_factors|which_ones
Required:
false
Options
Label Value Asplenia asplenia HIV / AIDS hiv__aids Immunosuppressive Therapy (Steroids, Chemotherapy, Radiation) immunosuppressive_therapy_steroids_chemotherapy_radiation Cardiac conditions cardiac_conditions Nefrotic syndrome nefrotic__syndrome Diabetes diabetes Carrier of a cochlear implant carrier_of_a_cochlear_implant Confirmed congenital immunodeficiency confirmed_congenital_immunodeficiency Leak of cerebrospinal fluid leak_of_cerebrospinal_fluid Sickle Cell Anemia sickle_cell_anemia Other other Nested option fields
- When other Is selected:text
Specify
Technical specs
CSV column name:
are_there_any_risk_factors|which_ones|specify
Length:
200
Required:
false
Mapping of the clinical building blocks (indicative only)
Concept:
be.en.hd.TransferConcern
Data element:
ProblemName
- When other Is selected:
7 Final classification
Final diagnosis
Technical specs
CSV column name:
final_diagnosis
Length:
200
Required:
false
Mapping of the clinical building blocks (indicative only)
Concept:
be.en.hd.TransferConcern
Data element:
ProblemName
Validation
- Date of final diagnosis cannot be after date of death (error)
Date of final diagnosis
Technical specs
Format:
DD/MM/YYYY
CSV column name:
date_of_final_diagnosis
Required:
false
Mapping of the clinical building blocks (indicative only)
Concept:
be.en.hd.TransferConcern
Data element:
ProblemStatusDate
Validation
- Date of final diagnosis cannot be after date of death (error)
Remarks
Technical specs
CSV column name:
remarks
Length:
400
Required:
false