Data Collection Definitions

Surveillance of Infectious diseases in Children by paediatricians and GP - Measles (Pedisurv_Measles)

  • Start date: 30/05/2017
Full viewCSV column namesValidation rulesReference listsComputed expressionsAdditional informationCSV extract

1 General information

Section help

Klinisch beeld van een gegeneraliseerde uitslag (> 3 dagen) en een temperatuur van > 38.0 °C en één of meer van de volgende symptomen: hoesten, coryza, Koplik vlekjes, conjunctivitis. ⇒ Gratis speekseltest kan aangevraagd worden voor de bevestiging van de diagnose tot 4 weken na aanvang van de rash. Het materiaal voor de afname kan aangevraagd worden bij: Veronik Hutse, WIV, Nationaal Laboratorium voor mazelen Tel: 02/ 642 56 90 Email: veronik.hutse@wiv-isp.be

text

NIHDI number of the reporting physician

Technical specs

CSV column name:

nihdi_number_of_the_reporting_physician

Length:

100

Reference list:

PHYSICIAN

Required:

false

Mapping of the clinical building blocks (indicative only)

Concept:

be.en.hd.Caregiver

Data element:

CareGiverIdentificationNumber

Validation
  • NIHDI number of the reporting physician: required field (warning) (warning)
patient identificator

National registry ID of the patient

Help

Please encode a social security identification number (SSIN). Please note that the patient ID is always pseudonymised before being transferred to Healthdata.

Technical specs

CSV column name:

patient_id

Required:

true

Mapping of the clinical building blocks (indicative only)

Concept:

be.en.hd.Patient

Data element:

PatientIdentificationNumber

Validation

The validity of the national register number is checked with the mod97 check.

Fields
Section help

Please encode a social security identification number (SSIN). Please note that the patient ID is always pseudonymised before being transferred to Healthdata.

text

Internal patient ID

Help

This field can be used to enter an internal ID or reference number. It is available for internal use only and is not transferred to Healthdata. If there is an integration between HD4DP and your organisation's patient administration system, additional patient identification information such as date of birth, sex and SSIN can be automatically enriched based on this internal patient ID. Please do not encode the social security identification number (SSIN) in this field. The SSIN must be encoded in the patient ID field.

Technical specs

CSV column name:

patient_id|internal_patient_id

Length:

50

Required:

false

boolean

Generated

Help

The patient_id|generated column can be set to 'TRUE' for an automatically generated patient_id.This column should only be added in case the patient_id is empty. If the column is set to 'TRUE', a patient_id is automatically generated based on the name, first name, date of birth and sex of the patient.

Technical specs

CSV column name:

patient_id|generated

Required:

false

Options
LabelValue
YesTRUE
NoFALSE
text

Name

Technical specs

CSV column name:

patient_id|name

Length:

50

Required:

false

Mapping of the clinical building blocks (indicative only)

Concept:

be.en.hd.Patient

Data element:

LastName

text

First name

Technical specs

CSV column name:

patient_id|first_name

Length:

50

Required:

false

Mapping of the clinical building blocks (indicative only)

Concept:

be.en.hd.Patient

Data element:

FirstNames

date

Date of birth

Technical specs

Format:

DD/MM/YYYY

CSV column name:

patient_id|date_of_birth

Required:

true

Mapping of the clinical building blocks (indicative only)

Concept:

be.en.hd.Patient

Data element:

DateOfBirth

Validation
  • Date of birth cannot be after date of death (error)
  • The date of birth cannot be in the future (error)
choice

Sex

Technical specs

CSV column name:

patient_id|sex

Required:

false

Options
LabelValue
MaleM
FemaleF
UnknownU
Mapping of the clinical building blocks (indicative only)

Concept:

be.en.hd.Patient

Data element:

Gender

text

Place of residence

Technical specs

CSV column name:

patient_id|place_of_residence

Length:

5

Reference list:

POSTAL_CODE

Required:

false

Mapping of the clinical building blocks (indicative only)

Concept:

be.en.hd.Patient

Data element:

Postcode

boolean

Deceased?

Technical specs

CSV column name:

patient_id|deceased

Required:

false

Mapping of the clinical building blocks (indicative only)

Concept:

be.en.hd.Patient

Data element:

DeathIndicator

Options
LabelValue
YesTRUE
NoFALSE
date

Date of death

Technical specs

Format:

DD/MM/YYYY

CSV column name:

patient_id|date_of_death

Only when:

Required:

false

Mapping of the clinical building blocks (indicative only)

Concept:

be.en.hd.Patient

Data element:

DateOfDeath

Validation
  • Date of birth cannot be after date of death (error)
  • Date of first symptoms cannot be after date of death (error)
  • Date of first appearance of rash cannot be after date of death (error)
  • Admission date cannot be after date of death (error)
  • Discharge date cannot be after date of death (error)
  • Date of last vaccination cannot be after date of death (error)
  • Sample date serology sample 1 cannot be after date of death (error)
  • Sample date serology sample 2 cannot be after date of death (error)
  • Sample date virology cannot be after date of death (error)
  • Date cannot be after date of death (error)
text

Cause of death

Technical specs

CSV column name:

cause_of_death

Length:

200

Only when:

Required:

false

Mapping of the clinical building blocks (indicative only)

Concept:

be.en.hd.TransferConcern

Data element:

ProblemName

2 Clinical information

date

Date of first symptoms

Technical specs

Format:

DD/MM/YYYY

CSV column name:

date_of_first_symptoms

Required:

false

Mapping of the clinical building blocks (indicative only)

Concept:

be.en.hd.TransferConcern

Data element:

ProblemStartDate

Validation
  • Date of first symptoms: required field (warning) (warning)
  • Date of first symptoms cannot be after date of death (error)
questionnaire

Symptoms

Technical specs

Required:

false

Mapping of the clinical building blocks (indicative only)

Concept:

be.en.hd.TransferConcern

Data element:

ProblemType

Validation
  • Date of first symptoms: required field (warning) (warning)
  • Date of first symptoms cannot be after date of death (error)
Questions
LabelCSV column name
Rashrash
Feverfever
Coughcough
Rhinitisrhinitis
Conjunctivitisconjunctivitis
Koplik spotskoplik_spots
Answers
LabelValue
Yes1
No0
Unknown9
date

Date of first appearance of rash

Technical specs

Format:

DD/MM/YYYY

CSV column name:

date_of_first_appearance_of_rash

Required:

false

Mapping of the clinical building blocks (indicative only)

Concept:

be.en.hd.TransferConcern

Data element:

ProblemStartDate

Validation
  • Date of first appearance of rash: required field (warning) (warning)
  • Date of first appearance of rash cannot be after date of death (error)
choice

Aspect of rash

Technical specs

CSV column name:

aspect_of_rash

Required:

false

Options
LabelValue
Maculopapular47725002
Vesicular53788007
Other10
Unknown9
Mapping of the clinical building blocks (indicative only)

Concept:

be.en.hd.TransferConcern

Data element:

ProblemName

Nested option fields
  • When 10 Is selected:
    text

    Specify

    Technical specs

    CSV column name:

    aspect_of_rash|specify

    Length:

    200

    Required:

    false

    Mapping of the clinical building blocks (indicative only)

    Concept:

    be.en.hd.TransferConcern

    Data element:

    ProblemName

choice

Complications

Technical specs

CSV column name:

complications

Required:

false

Options
LabelValue
Yes1
No0
Unknown9
Mapping of the clinical building blocks (indicative only)

Concept:

be.en.hd.TransferConcern

Data element:

ProblemName

Nested option fields
  • When 1 Is selected:
    multichoice

    Specify

    Technical specs

    CSV column name:

    complications|specify_1

    Required:

    false

    Options
    LabelValue
    Acute encephalitisacute_encephalitis
    Pneumoniapneumonia
    Otitis mediaotitis_media
    Diarrhoeadiarrhoea
    Dehydrationdehydration
    Otherother
    Mapping of the clinical building blocks (indicative only)

    Concept:

    be.en.hd.TransferConcern

    Data element:

    ProblemName

    Nested option fields
    • When other Is selected:
      text

      Specify

      Technical specs

      CSV column name:

      complications|specify_1|specify

      Length:

      200

      Required:

      false

      Mapping of the clinical building blocks (indicative only)

      Concept:

      be.en.hd.TransferConcern

      Data element:

      ProblemName

3 Hospitalisation

choice

Was the patient hospitalised?

Technical specs

CSV column name:

was_the_patient_hospitalised

Required:

false

Options
LabelValue
Yes1
No0
Mapping of the clinical building blocks (indicative only)

Concept:

be.en.hd.Contact

Data element:

ContactType

Validation
  • Admission date cannot be after date of death (error)
  • Discharge date cannot be after date of death (error)
  • Admission date cannot be after discharge date (error)
Nested option fields
  • When 1 Is selected:
    date

    Admission date

    Technical specs

    Format:

    DD/MM/YYYY

    CSV column name:

    was_the_patient_hospitalised|admission_date

    Required:

    false

    Mapping of the clinical building blocks (indicative only)

    Concept:

    be.en.hd.Contact

    Data element:

    StartDateTime

    date

    Discharge date

    Technical specs

    Format:

    DD/MM/YYYY

    CSV column name:

    was_the_patient_hospitalised|discharge_date

    Required:

    false

    Mapping of the clinical building blocks (indicative only)

    Concept:

    be.en.hd.Contact

    Data element:

    EndDateTime

4 Vaccination

choice

Has the patient been vaccinated for measles?

Technical specs

CSV column name:

has_the_patient_been_vaccinated_for_measles

Required:

false

Options
LabelValue
Yes1
No0
Unknown9
Mapping of the clinical building blocks (indicative only)

Concept:

be.en.hd.Vaccination

Data element:

ProductCode

Validation
  • Has the patient been vaccinated for measles?: required field (warning) (warning)
  • How many doses did he/she receive?: required field (warning) (warning)
  • Date of last vaccination: required field (warning) (warning)
  • Date of last vaccination cannot be after date of death (error)
Nested option fields
  • When 1 Is selected:
    choice

    How many doses did he/she receive?

    Technical specs

    CSV column name:

    has_the_patient_been_vaccinated_for_measles|how_many_doses_did_heshe_receive

    Required:

    false

    Options
    LabelValue
    11
    22
    33
    44
    Unknown9
    Mapping of the clinical building blocks (indicative only)

    Concept:

    be.en.hd.Vaccination

    Data element:

    Dose

    date

    Date of last vaccination

    Technical specs

    Format:

    DD/MM/YYYY

    CSV column name:

    has_the_patient_been_vaccinated_for_measles|date_of_last_vaccination

    Required:

    false

    Mapping of the clinical building blocks (indicative only)

    Concept:

    be.en.hd.Vaccination

    Data element:

    VaccinationDate

    choice

    Has the vaccination been documented (card/file/register/...)?

    Technical specs

    CSV column name:

    has_the_patient_been_vaccinated_for_measles|has_the_vaccination_been_documented_cardfileregister

    Required:

    false

    Options
    LabelValue
    Yes1
    No0
    Unknown9
  • When 0 Is selected:
    choice

    Why was the patient not vaccinated against measles?

    Technical specs

    CSV column name:

    has_the_patient_been_vaccinated_for_measles|why_was_the_patient_not_vaccinated_against_measles

    Required:

    false

    Options
    LabelValue
    Too young for vaccination1
    Forgotten2
    Anti-vaccine3
    Contra-indicated (disease, allergy, ...)4
    Fear, mistrust5
    Lack of information6
    No access to vaccine in country of origin7
    Unknown9
    Other10
    Nested option fields
    • When 10 Is selected:
      text

      Specify

      Technical specs

      CSV column name:

      has_the_patient_been_vaccinated_for_measles|why_was_the_patient_not_vaccinated_against_measles|specify

      Length:

      200

      Required:

      false

5 Laboratory investigation

fieldset

Serology

Fields
choice

Was a serological examination performed in search of antibodies for measles?

Technical specs

CSV column name:

serology|was_a_serological_examination_performed_in_search_of_antibodies_for_measles

Required:

false

Options
LabelValue
Yes1
No0
Unknown9
Mapping of the clinical building blocks (indicative only)

Concept:

be.en.hd.TransferLaboratoryResult

Data element:

ResultType

fieldset

Serology sample 1

Fields
date

Sample date

Technical specs

Format:

DD/MM/YYYY

CSV column name:

serology|serology_sample_1|sample_date

Required:

false

Mapping of the clinical building blocks (indicative only)

Concept:

be.en.hd.TransferLaboratoryResult

Data element:

DrawingDateTime

Validation
  • Sample date serology sample 1 cannot be after date of death (error)
choice

Sample type

Technical specs

CSV column name:

serology|serology_sample_1|sample_type

Required:

false

Options
LabelValue
Serum119364003
Saliva swab119342007
Other10
Unknown9
Mapping of the clinical building blocks (indicative only)

Concept:

be.en.hd.TransferLaboratoryResult

Data element:

SpecimenMaterial

choice

Result IgM

Technical specs

CSV column name:

serology|serology_sample_1|result_igm

Required:

true

Options
LabelValue
Not tested2
Positive1
Negative0
Equivocal3
Unknown9
Mapping of the clinical building blocks (indicative only)

Concept:

be.en.hd.TransferLaboratoryResult

Data element:

Result

choice

Result IgG

Technical specs

CSV column name:

serology|serology_sample_1|result_igg

Required:

true

Options
LabelValue
Not tested2
Positive1
Negative0
Equivocal3
Unknown9
Seroconversion4
Mapping of the clinical building blocks (indicative only)

Concept:

be.en.hd.TransferLaboratoryResult

Data element:

Result

fieldset

Serology sample 2

Fields
date

Sample date

Technical specs

Format:

DD/MM/YYYY

CSV column name:

serology|serology_sample_2|sample_date

Required:

false

Mapping of the clinical building blocks (indicative only)

Concept:

be.en.hd.TransferLaboratoryResult

Data element:

DrawingDateTime

Validation
  • Sample date serology sample 2 cannot be after date of death (error)
choice

Sample type

Technical specs

CSV column name:

serology|serology_sample_2|sample_type

Required:

false

Options
LabelValue
Serum119364003
Saliva swab119342007
Other10
Unknown9
Mapping of the clinical building blocks (indicative only)

Concept:

be.en.hd.TransferLaboratoryResult

Data element:

SpecimenMaterial

choice

Result IgM

Technical specs

CSV column name:

serology|serology_sample_2|result_igm

Required:

false

Options
LabelValue
Not tested2
Positive1
Negative0
Equivocal3
Unknown9
Mapping of the clinical building blocks (indicative only)

Concept:

be.en.hd.TransferLaboratoryResult

Data element:

Result

choice

Result IgG

Technical specs

CSV column name:

serology|serology_sample_2|result_igg

Required:

false

Options
LabelValue
Not tested2
Positive1
Negative0
Equivocal3
Unknown9
Seroconversion4
Mapping of the clinical building blocks (indicative only)

Concept:

be.en.hd.TransferLaboratoryResult

Data element:

Result

fieldset

Virology

Fields
choice

Was a virological examination performed in search of the measles virus?

Technical specs

CSV column name:

virology|was_a_virological_examination_performed_in_search_of_the_measles_virus

Required:

false

Options
LabelValue
Yes1
No0
Unknown9
Mapping of the clinical building blocks (indicative only)

Concept:

be.en.hd.TransferLaboratoryResult

Data element:

ResultType

fieldset

Virology sample

Fields
date

Sample date

Technical specs

Format:

DD/MM/YYYY

CSV column name:

virology|virology_sample|sample_date

Required:

false

Mapping of the clinical building blocks (indicative only)

Concept:

be.en.hd.TransferLaboratoryResult

Data element:

DrawingDateTime

Validation
  • Sample date virology cannot be after date of death (error)
choice

Sample type

Technical specs

CSV column name:

virology|virology_sample|sample_type

Required:

false

Options
LabelValue
Saliva swab119342007
Naso-pharyngeal swab258500001
Cerebrospinal fluid258450006
Other10
Unknown9
Mapping of the clinical building blocks (indicative only)

Concept:

be.en.hd.TransferLaboratoryResult

Data element:

SpecimenMaterial

choice

Result PCR

Technical specs

CSV column name:

virology|virology_sample|result_pcr

Required:

true

Options
LabelValue
Not tested2
Positive1
Negative0
Unknown9
Not feasible8
Mapping of the clinical building blocks (indicative only)

Concept:

be.en.hd.TransferLaboratoryResult

Data element:

Result

choice

Result culture

Technical specs

CSV column name:

virology|virology_sample|result_culture

Required:

false

Options
LabelValue
Not tested2
Positive1
Negative0
Unknown9
Not feasible8
Mapping of the clinical building blocks (indicative only)

Concept:

be.en.hd.TransferLaboratoryResult

Data element:

Result

text

N° of national reference center

Technical specs

CSV column name:

virology|virology_sample|n_of_national_reference_center

Length:

100

Required:

false

Mapping of the clinical building blocks (indicative only)

Concept:

be.en.hd.HealthcareProvider

Data element:

HealthcareProviderIdentificationNumber

choice

Genotype

Technical specs

CSV column name:

virology|virology_sample|genotype

Required:

false

Options
LabelValue
Aa
B1b1
B2b2
B3b3
C1c1
C2c2
D1d1
D10d10
D11d11
D2d2
D3d3
D4d4
D5d5
D6d6
D7d7
D8d8
D9d9
Ee
Ff
G1g1
G2g2
G3g3
H1h1
H2h2
Unknown9
Mapping of the clinical building blocks (indicative only)

Concept:

be.en.hd.TransferLaboratoryResult

Data element:

Result

6 Possible source of infection

choice

Has there been a contact with a probable or confirmed case of measles 7 to 18 days prior to the onset of rash?

Technical specs

CSV column name:

has_there_been_a_contact_with_a_probable_or_confirmed_case_of_measles_7_to_18_days_prior_to_the_onset_of_rash

Required:

false

Options
LabelValue
Yes1
No0
Unknown9
Nested option fields
  • When 1 Is selected:
    text

    With whom?

    Technical specs

    CSV column name:

    has_there_been_a_contact_with_a_probable_or_confirmed_case_of_measles_7_to_18_days_prior_to_the_onset_of_rash|with_whom

    Length:

    200

    Required:

    false

    text

    (inspector) MATRA number

    Technical specs

    CSV column name:

    has_there_been_a_contact_with_a_probable_or_confirmed_case_of_measles_7_to_18_days_prior_to_the_onset_of_rash|inspector_matra_number

    Length:

    200

    Only when:

    Required:

    false

    choice

    Where?

    Technical specs

    CSV column name:

    has_there_been_a_contact_with_a_probable_or_confirmed_case_of_measles_7_to_18_days_prior_to_the_onset_of_rash|where

    Required:

    false

    Options
    LabelValue
    School1
    Daycare (Kindergarten or child care)2
    Family3
    Hospital4
    University5
    Sports team6
    Military7
    Other10
    Not applicable11
    Unknown9
    Nested option fields
    • When 10 Is selected:
      text

      Specify

      Technical specs

      CSV column name:

      has_there_been_a_contact_with_a_probable_or_confirmed_case_of_measles_7_to_18_days_prior_to_the_onset_of_rash|where|specify_2

      Length:

      200

      Required:

      false

    text

    (inspector) Cluster identification number

    Technical specs

    CSV column name:

    has_there_been_a_contact_with_a_probable_or_confirmed_case_of_measles_7_to_18_days_prior_to_the_onset_of_rash|inspector_cluster_identification_number

    Length:

    200

    Only when:

    Required:

    false

choice

Has the patient been living or travelling abroad 7 to 18 days prior to the onset of rash?

Technical specs

CSV column name:

has_the_patient_been_living_or_travelling_abroad_7_to_18_days_prior_to_the_onset_of_rash

Required:

false

Options
LabelValue
Yes1
No0
Unknown9
Validation
  • Has the patient been living or travelling abroad 7 to 18 days prior to the onset of rash?: required field (warning) (warning)
  • In case of travel, where?: required field (warning) (warning)
Nested option fields
  • When 1 Is selected:
    text

    Where?

    Technical specs

    CSV column name:

    has_the_patient_been_living_or_travelling_abroad_7_to_18_days_prior_to_the_onset_of_rash|where

    Length:

    200

    Reference list:

    COUNTRY

    Required:

    false

choice

Has the patient been in contact with people coming from abroad (e.g. due to work, family visits) 7 to 18 days prior to the outbreak of rash ?

Technical specs

CSV column name:

has_the_patient_been_in_contact_with_people_coming_from_abroad_eg_due_to_work_family_visits_7_to_18_days_prior_to_the_outbreak_of_rash_

Required:

false

Options
LabelValue
Yes1
No0
Unknown9
Nested option fields
  • When 1 Is selected:
    text

    Contact coming from which country?

    Technical specs

    CSV column name:

    has_the_patient_been_in_contact_with_people_coming_from_abroad_eg_due_to_work_family_visits_7_to_18_days_prior_to_the_outbreak_of_rash_|contact_coming_from_which_country

    Length:

    200

    Reference list:

    COUNTRY

    Required:

    false

7 Final classification

date

Date

Technical specs

Format:

DD/MM/YYYY

CSV column name:

date

Required:

false

Validation
  • Date of last vaccination: required field (warning) (warning)
  • Date of first symptoms: required field (warning) (warning)
  • Date of first appearance of rash: required field (warning) (warning)
  • Date of birth cannot be after date of death (error)
  • Date of first symptoms cannot be after date of death (error)
  • Date of first appearance of rash cannot be after date of death (error)
  • Admission date cannot be after date of death (error)
  • Discharge date cannot be after date of death (error)
  • Date of last vaccination cannot be after date of death (error)
  • Sample date serology sample 1 cannot be after date of death (error)
  • Sample date serology sample 2 cannot be after date of death (error)
  • Sample date virology cannot be after date of death (error)
  • Date cannot be after date of death (error)
  • Admission date cannot be after discharge date (error)
  • The date of birth cannot be in the future (error)
choice

Final diagnosis

Technical specs

CSV column name:

final_diagnosis

Required:

true

Options
LabelValue
Only clinical symptoms (possible measles case)1
Clinical symptoms + epidemiological link with a measles case (probable measles case)2
Clinical symptoms + laboratory confirmation (confirmed measles case)3
Post-vaccination measles (measles within 21 days after vaccination and/or genotype A)4
Other diagnostic5
Mapping of the clinical building blocks (indicative only)

Concept:

be.en.hd.TransferConcern

Data element:

ProblemName

Nested option fields
  • When 5 Is selected:
    text

    Pleasy specify

    Technical specs

    CSV column name:

    final_diagnosis|pleasy_specify

    Length:

    200

    Required:

    false

    Mapping of the clinical building blocks (indicative only)

    Concept:

    be.en.hd.TransferConcern

    Data element:

    ProblemName

text

Remarks

Technical specs

CSV column name:

remarks

Length:

400

Required:

false