Data Collection Definitions

Surveillance of Infectious diseases in Children by paediatricians and GP - Mumps (Pedisurv_Mumps)

  • Start date: 30/05/2017
Full viewCSV column namesValidation rulesReference listsComputed expressionsAdditional informationCSV extract

1 General information

Section help

Klinisch beeld van een acute, pijnlijke, self-limiting zwelling van de oorspeekselklier of een andere speekselklier, één- of tweezijdig, duur > 2 dagen, zonder andere aanwijsbare oorzaak.

text

NIHDI number of the reporting physician

Technical specs

CSV column name:

nihdi_number_of_the_reporting_physician

Length:

100

Reference list:

PHYSICIAN

Required:

true

Mapping of the clinical building blocks (indicative only)

Concept:

be.en.hd.Caregiver

Data element:

CareGiverIdentificationNumber

Validation
  • NIHDI number of the reporting physician: required field (warning) (warning)
patient identificator

National registry ID of the patient

Help

Please encode a social security identification number (SSIN). Please note that the patient ID is always pseudonymised before being transferred to Healthdata.

Technical specs

CSV column name:

patient_id

Required:

true

Mapping of the clinical building blocks (indicative only)

Concept:

be.en.hd.Patient

Data element:

PatientIdentificationNumber

Validation

The validity of the national register number is checked with the mod97 check.

Fields
Section help

Please encode a social security identification number (SSIN). Please note that the patient ID is always pseudonymised before being transferred to Healthdata.

text

Internal patient ID

Help

This field can be used to enter an internal ID or reference number. It is available for internal use only and is not transferred to Healthdata. If there is an integration between HD4DP and your organisation's patient administration system, additional patient identification information such as date of birth, sex and SSIN can be automatically enriched based on this internal patient ID. Please do not encode the social security identification number (SSIN) in this field. The SSIN must be encoded in the patient ID field.

Technical specs

CSV column name:

patient_id|internal_patient_id

Length:

50

Required:

false

boolean

Generated

Help

The patient_id|generated column can be set to 'TRUE' for an automatically generated patient_id.This column should only be added in case the patient_id is empty. If the column is set to 'TRUE', a patient_id is automatically generated based on the name, first name, date of birth and sex of the patient.

Technical specs

CSV column name:

patient_id|generated

Required:

false

Options
LabelValue
YesTRUE
NoFALSE
text

Name

Technical specs

CSV column name:

patient_id|name

Length:

50

Required:

false

Mapping of the clinical building blocks (indicative only)

Concept:

be.en.hd.Patient

Data element:

LastName

text

First name

Technical specs

CSV column name:

patient_id|first_name

Length:

50

Required:

false

Mapping of the clinical building blocks (indicative only)

Concept:

be.en.hd.Patient

Data element:

FirstNames

date

Date of birth

Technical specs

Format:

DD/MM/YYYY

CSV column name:

patient_id|date_of_birth

Required:

true

Mapping of the clinical building blocks (indicative only)

Concept:

be.en.hd.Patient

Data element:

DateOfBirth

Validation
  • Date of birth cannot be after date of death (error)
  • The date of birth cannot be in the future (error)
choice

Sex

Technical specs

CSV column name:

patient_id|sex

Required:

false

Options
LabelValue
MaleM
FemaleF
UnknownU
Mapping of the clinical building blocks (indicative only)

Concept:

be.en.hd.Patient

Data element:

Gender

Validation
  • Sex: required field (warning) (warning)
text

Place of residence

Technical specs

CSV column name:

patient_id|place_of_residence

Length:

5

Reference list:

POSTAL_CODE

Required:

false

Mapping of the clinical building blocks (indicative only)

Concept:

be.en.hd.Patient

Data element:

Postcode

boolean

Deceased?

Technical specs

CSV column name:

patient_id|deceased

Required:

false

Mapping of the clinical building blocks (indicative only)

Concept:

be.en.hd.Patient

Data element:

DeathIndicator

Options
LabelValue
YesTRUE
NoFALSE
date

Date of death

Technical specs

Format:

DD/MM/YYYY

CSV column name:

patient_id|date_of_death

Only when:

Required:

false

Mapping of the clinical building blocks (indicative only)

Concept:

be.en.hd.Patient

Data element:

DateOfDeath

Validation
  • Date of birth cannot be after date of death (error)
  • Date of first symptoms cannot be after date of death (error)
  • Admission date cannot be after date of death (error)
  • Discharge date cannot be after date of death (error)
  • Date of last vaccination cannot be after date of death (error)
  • Date of laboratory result (first validated result) cannot be after date of death (error)
  • Date of final classification cannot be after date of death (error)
  • Date of first specimen collection cannot be after date of death (error)
text

Cause of death

Technical specs

CSV column name:

cause_of_death

Length:

200

Only when:

Required:

false

Mapping of the clinical building blocks (indicative only)

Concept:

be.en.hd.TransferConcern

Data element:

ProblemName

2 Clinical information

date

Date of first symptoms

Technical specs

Format:

DD/MM/YYYY

CSV column name:

date_of_first_symptoms

Required:

true

Mapping of the clinical building blocks (indicative only)

Concept:

be.en.hd.TransferConcern

Data element:

ProblemStartDate

Validation
  • Date of first symptoms cannot be after date of death (error)
fieldset

Symptoms

Fields
choice

Fever

Technical specs

CSV column name:

symptoms|fever

Required:

false

Options
LabelValue
Yes1
No0
Unknown9
Mapping of the clinical building blocks (indicative only)

Concept:

be.en.hd.TransferConcern

Data element:

ProblemName

choice

Headache

Technical specs

CSV column name:

symptoms|headache

Required:

false

Options
LabelValue
Yes1
No0
Unknown9
Mapping of the clinical building blocks (indicative only)

Concept:

be.en.hd.TransferConcern

Data element:

ProblemName

choice

Swelling of saliva glands

Technical specs

CSV column name:

symptoms|swelling_of_saliva_glands

Required:

false

Options
LabelValue
Yes1
No0
Unknown9
Mapping of the clinical building blocks (indicative only)

Concept:

be.en.hd.TransferConcern

Data element:

ProblemName

Validation
  • Swelling of saliva glands: required field (warning) (warning)
Nested option fields
  • When 1 Is selected:
    choice

    Location

    Technical specs

    CSV column name:

    symptoms|swelling_of_saliva_glands|location

    Required:

    false

    Options
    LabelValue
    Unilateral1
    Bilateral2
    choice

    Pain

    Technical specs

    CSV column name:

    symptoms|swelling_of_saliva_glands|pain

    Required:

    false

    Options
    LabelValue
    Yes1
    No0
    Unknown9
    Mapping of the clinical building blocks (indicative only)

    Concept:

    be.en.hd.TransferConcern

    Data element:

    ProblemName

    number

    Duration (in number of days)

    Technical specs

    CSV column name:

    symptoms|swelling_of_saliva_glands|duration_in_number_of_days

    Length:

    3,3

    Required:

    false

text

Other symptoms

Technical specs

CSV column name:

symptoms|other_symptoms

Length:

200

Required:

false

Mapping of the clinical building blocks (indicative only)

Concept:

be.en.hd.TransferConcern

Data element:

ProblemName

choice

Were there any complications?

Technical specs

CSV column name:

symptoms|complications

Required:

false

Options
LabelValue
Yes1
No0
Unknown9
Mapping of the clinical building blocks (indicative only)

Concept:

be.en.hd.TransferConcern

Data element:

ProblemType

Nested option fields
  • When 1 Is selected:
    multichoice

    Specify

    Technical specs

    CSV column name:

    symptoms|complications|specify_1

    Required:

    false

    Options
    LabelValue
    Acute encephalitisacute_encephalitis
    Pneumoniapneumonia
    Otitis mediaotitis_media
    Diarrhoea diarrhoea
    Dehydrationdehydration
    Otherother
    Mapping of the clinical building blocks (indicative only)

    Concept:

    be.en.hd.TransferConcern

    Data element:

    ProblemName

    Nested option fields
    • When other Is selected:
      text

      Specify

      Technical specs

      CSV column name:

      symptoms|complications|specify_1|specify

      Length:

      200

      Required:

      false

      Mapping of the clinical building blocks (indicative only)

      Concept:

      be.en.hd.TransferConcern

      Data element:

      ProblemName

3 Hospitalisation

choice

Was the patient hospitalised?

Technical specs

CSV column name:

was_the_patient_hospitalised

Required:

false

Options
LabelValue
Yes1
No0
Mapping of the clinical building blocks (indicative only)

Concept:

be.en.hd.Contact

Data element:

ContactType

Validation
  • Admission date cannot be after date of death (error)
  • Discharge date cannot be after date of death (error)
  • Admission date cannot be after discharge date (error)
Nested option fields
  • When 1 Is selected:
    date

    Admission date

    Technical specs

    Format:

    DD/MM/YYYY

    CSV column name:

    was_the_patient_hospitalised|admission_date

    Required:

    false

    Mapping of the clinical building blocks (indicative only)

    Concept:

    be.en.hd.Contact

    Data element:

    StartDateTime

    date

    Discharge date

    Technical specs

    Format:

    DD/MM/YYYY

    CSV column name:

    was_the_patient_hospitalised|discharge_date

    Required:

    false

    Mapping of the clinical building blocks (indicative only)

    Concept:

    be.en.hd.Contact

    Data element:

    EndDateTime

4 Vaccination

choice

Has the patient been vaccinated for mumps?

Technical specs

CSV column name:

has_the_patient_been_vaccinated_for_mumps

Required:

false

Options
LabelValue
Yes1
No0
Unknown9
Mapping of the clinical building blocks (indicative only)

Concept:

be.en.hd.Vaccination

Data element:

ProductCode

Validation
  • Date of last vaccination cannot be after date of death (error)
  • Has the patient been vaccinated for mumps?: required field (warning) (warning)
  • Number of doses received: required field (warning) (warning)
  • Date of last vaccination: required field (warning) (warning)
Nested option fields
  • When 1 Is selected:
    choice

    Number of doses received

    Technical specs

    CSV column name:

    has_the_patient_been_vaccinated_for_mumps|number_of_doses_received

    Required:

    false

    Options
    LabelValue
    11
    22
    33
    44
    Unknown9
    Mapping of the clinical building blocks (indicative only)

    Concept:

    be.en.hd.Vaccination

    Data element:

    Dose

    date

    Date of last vaccination

    Technical specs

    Format:

    DD/MM/YYYY

    CSV column name:

    has_the_patient_been_vaccinated_for_mumps|date_of_last_vaccination

    Required:

    false

    Mapping of the clinical building blocks (indicative only)

    Concept:

    be.en.hd.Vaccination

    Data element:

    VaccinationDate

    choice

    Is the vaccination documented (card/file/register/...)?

    Technical specs

    CSV column name:

    has_the_patient_been_vaccinated_for_mumps|is_the_vaccination_documented_cardfileregister

    Required:

    false

    Options
    LabelValue
    Yes1
    No0
    Unknown9
  • When 0 Is selected:
    choice

    Why was the patient not vaccinated for mumps?

    Technical specs

    CSV column name:

    has_the_patient_been_vaccinated_for_mumps|why_was_the_patient_not_vaccinated_for_mumps

    Required:

    false

    Options
    LabelValue
    Too young for vaccination1
    Forgotten2
    Anti-vaccine3
    Contra-indicated (disease, allergy, ...)4
    Fear, mistrust5
    Lack of information6
    No access to vaccine in country of origin7
    Unknown9
    Other10
    Nested option fields
    • When 10 Is selected:
      text

      Specify

      Technical specs

      CSV column name:

      has_the_patient_been_vaccinated_for_mumps|why_was_the_patient_not_vaccinated_for_mumps|specify

      Length:

      200

      Required:

      false

5 Laboratory investigation

choice

Was a specimen collected?

Technical specs

CSV column name:

was_a_specimen_collected

Required:

false

Options
LabelValue
Yes1
No0
Unknown9
Mapping of the clinical building blocks (indicative only)

Concept:

be.en.hd.TransferPlannedCareActivity

Data element:

OrderStatus

multichoice

Type of specimen

Technical specs

CSV column name:

type_of_specimen

Only when:

Required:

false

Options
LabelValue
Serumserum
Saliva swabsaliva_swab
Nasopharyngeal swabnasopharyngeal_swab
Urineurine
Cerebrospinal fluidcerebrospinal_fluid
Otherother
Mapping of the clinical building blocks (indicative only)

Concept:

be.en.hd.TransferLaboratoryResult

Data element:

SpecimenMaterial

Nested option fields
  • When other Is selected:
    text

    Specify

    Technical specs

    CSV column name:

    type_of_specimen|specify

    Length:

    200

    Required:

    false

    Mapping of the clinical building blocks (indicative only)

    Concept:

    be.en.hd.TransferLaboratoryResult

    Data element:

    SpecimenMaterial

date

Date of first specimen collection

Technical specs

Format:

DD/MM/YYYY

CSV column name:

date_of_first_specimen_collection

Only when:

Required:

false

Mapping of the clinical building blocks (indicative only)

Concept:

be.en.hd.TransferLaboratoryResult

Data element:

DrawingDateTime

Validation
  • Date of first specimen collection cannot be after date of death (error)
  • Date of first specimen collection cannot be after Date of laboratory result (first validated result) (error)
choice

Mumps IgM

Technical specs

CSV column name:

mumps_igm

Only when:

Required:

false

Options
LabelValue
Not tested2
Positive1
Negative0
Equivocal3
Unknown9
Mapping of the clinical building blocks (indicative only)

Concept:

be.en.hd.TransferLaboratoryResult

Data element:

Result

choice

Mumps IgG

Technical specs

CSV column name:

mumps_igg

Only when:

Required:

false

Options
LabelValue
Not tested2
Positive for recent infection1
Negative0
Equivocal3
Unknown9
Mapping of the clinical building blocks (indicative only)

Concept:

be.en.hd.TransferLaboratoryResult

Data element:

Result

choice

Mumps PCR

Technical specs

CSV column name:

mumps_pcr

Only when:

Required:

false

Options
LabelValue
Not tested2
Positive1
Negative0
Unknown9
Not feasible8
Mapping of the clinical building blocks (indicative only)

Concept:

be.en.hd.TransferLaboratoryResult

Data element:

Result

Nested option fields
  • When 1 Is selected:
    choice

    Genotype

    Technical specs

    CSV column name:

    mumps_pcr|genotype

    Required:

    false

    Options
    LabelValue
    Aa
    Bb
    Cc
    Dd
    Ee
    Ff
    Gg
    Hh
    Ii
    Jj
    Kk
    Ll
    Nn
    Unknown9
    Mapping of the clinical building blocks (indicative only)

    Concept:

    be.en.hd.TransferLaboratoryResult

    Data element:

    Result

date

Date of laboratory result (first validated result)

Technical specs

Format:

DD/MM/YYYY

CSV column name:

date_of_laboratory_result_first_validated_result

Only when:

Required:

false

Mapping of the clinical building blocks (indicative only)

Concept:

be.en.hd.TransferLaboratoryResult

Data element:

TestDateTime

Validation
  • Date of laboratory result (first validated result) cannot be after date of death (error)
  • Date of first specimen collection cannot be after Date of laboratory result (first validated result) (error)

6 Possible source of infection

choice

Has the patient been in contact with a probable case of mumps in the 14 to 21 days prior to the onset of the disease?

Technical specs

CSV column name:

has_the_patient_been_in_contact_with_a_probable_case_of_mumps_in_the_14_to_21_days_prior_to_the_onset_of_the_disease

Required:

false

Options
LabelValue
Yes1
No0
Unknown9
Nested option fields
  • When 1 Is selected:
    text

    With whom?

    Technical specs

    CSV column name:

    has_the_patient_been_in_contact_with_a_probable_case_of_mumps_in_the_14_to_21_days_prior_to_the_onset_of_the_disease|with_whom

    Length:

    200

    Required:

    false

    choice

    Where?

    Technical specs

    CSV column name:

    has_the_patient_been_in_contact_with_a_probable_case_of_mumps_in_the_14_to_21_days_prior_to_the_onset_of_the_disease|where

    Required:

    false

    Options
    LabelValue
    School1
    Daycare (Kindergarten or child care)2
    Family3
    Hospital4
    University5
    Sports team6
    Military7
    Other10
    Not applicable11
    Unknown9
choice

Have there been other reported cases of mumps in the region?

Technical specs

CSV column name:

have_there_been_other_reported_cases_of_mumps_in_the_region

Required:

false

Options
LabelValue
Yes1
No0
Unknown9
choice

Has the patient been staying abroad in the 14 to 21 days prior to the onset of the disease?

Technical specs

CSV column name:

has_the_patient_been_staying_abroad_in_the_14_to_21_days_prior_to_the_onset_of_the_disease

Required:

false

Options
LabelValue
Yes1
No0
Unknown9
Nested option fields
  • When 1 Is selected:
    text

    Where?

    Technical specs

    CSV column name:

    has_the_patient_been_staying_abroad_in_the_14_to_21_days_prior_to_the_onset_of_the_disease|where

    Length:

    200

    Reference list:

    COUNTRY

    Required:

    false

choice

Has the patient been in contact with people coming from abroad (e.g. due to work, family visits)?

Technical specs

CSV column name:

has_the_patient_been_in_contact_with_people_coming_from_abroad_eg_due_to_work_family_visits

Required:

false

Options
LabelValue
Yes1
No0
Unknown9

7 Final classification

date

Date of final classification

Technical specs

Format:

DD/MM/YYYY

CSV column name:

date_of_final_classification

Required:

false

Validation
  • Date of final classification cannot be after date of death (error)
choice

Final diagnosis

Technical specs

CSV column name:

final_diagnosis

Required:

true

Options
LabelValue
Only clinical symptoms (possible mumps case)1
Clinical symptoms + epidemiological link with a mumps case (probable mumps case)2
Clinical syptoms + laboratory confirmation (confirmed mumps case)3
Other diagnostic (no mumps)4
Mapping of the clinical building blocks (indicative only)

Concept:

be.en.hd.TransferConcern

Data element:

ProblemName

text

Remarks

Technical specs

CSV column name:

remarks

Length:

400

Required:

false