Pedisurv_Pertussis (Pedisurv_Pertussis)

Version:
Status: active
Unique ID: patient ID and date start hospitalisation
How to create a CSV file for this data collection?

Start date: 30/05/2017

Full view CSV column names Validation rules Reference lists Computed expressions Additional information CSV extract

1 Identification

Section help

This questionnaire is for the reporting of hospitalised cases of pertussis or pertussis-like illness caused by B. pertussis, B. parapertussis, B. holmesii or B. bronchiseptica in children younger than 3 years of age (at the moment of hospitalisation).

patient identificator

National registry ID of the patient

Help

Please encode a social security identification number (SSIN). Please note that the patient ID is always pseudonymised before being transferred to Healthdata.

Technical specs

CSV column name:

patient_id

Required:

true

Mapping of the clinical building blocks (indicative only)

Concept:

be.en.hd.Patient

Data element:

PatientIdentificationNumber

Validation

The validity of the national register number is checked with the mod97 check.

Fields

Section help

Please encode a social security identification number (SSIN). Please note that the patient ID is always pseudonymised before being transferred to Healthdata.

text

Internal patient ID

Help

This field can be used to enter an internal ID or reference number. It is available for internal use only and is not transferred to Healthdata. If there is an integration between HD4DP and your organisation's patient administration system, additional patient identification information such as date of birth, sex and SSIN can be automatically enriched based on this internal patient ID. Please do not encode the social security identification number (SSIN) in this field. The SSIN must be encoded in the field 'National registry ID of the patient'.

Technical specs

CSV column name:

patient_id|internal_patient_id

Length:

Required:

false

boolean

Generated

Help

The patient_id|generated column can be set to 'TRUE' for an automatically generated patient_id.This column should only be added in case the patient_id is empty. If the column is set to 'TRUE', a patient_id is automatically generated based on the name, first name, date of birth and sex of the patient.

Technical specs

CSV column name:

patient_id|generated

Required:

false

Options

Label	Value
Yes	TRUE
No	FALSE

text

Last Name

Help

The name of the patient is never transferred to Healthdata and is available for your information only.

Technical specs

CSV column name:

patient_id|name

Length:

Required:

noSSIN(Needed only if no national register number is entered)

Mapping of the clinical building blocks (indicative only)

Concept:

be.en.hd.Patient

Data element:

LastName

text

First Name

Help

The first name of the patient is never transferred and is available for your information only.

Technical specs

CSV column name:

patient_id|first_name

Length:

Required:

noSSIN(Needed only if no national register number is entered)

Mapping of the clinical building blocks (indicative only)

Concept:

be.en.hd.Patient

Data element:

FirstNames

date

Date of birth

Technical specs

Format:

DD/MM/YYYY

CSV column name:

patient_id|date_of_birth

Required:

noSSIN(Needed only if no national register number is entered)

Mapping of the clinical building blocks (indicative only)

Concept:

be.en.hd.Patient

Data element:

DateOfBirth

Validation

Date of birth cannot be in the future (error)
Date of death cannot be before date of birth (error)
Date start hospitalisation needs to be after or equal to the date of birth (error)
Date symptoms onset cannot be before date of birth (error)
The difference between date of start hospitalisation and date of birth$ can not be higher than or equal to 3 years (error)

choice

Sex

Technical specs

CSV column name:

patient_id|sex

Required:

noSSIN(Needed only if no national register number is entered)

Options

Label	Value
Female	F
Male	M
Unknown	U

Mapping of the clinical building blocks (indicative only)

Concept:

be.en.hd.Patient

Data element:

Gender

text

Place of residence

Help

For a patient who resides in another country than Belgium, the option "9999 - Residence not in Belgium" needs to be selected. If the residence is not known the option "999 - Missing data" needs to be selected

Technical specs

CSV column name:

patient_id|place_of_residence

Length:

Reference list:

POSTAL_CODE

Required:

true

Mapping of the clinical building blocks (indicative only)

Concept:

be.en.hd.Patient

Data element:

Place of residence

boolean

Deceased?

Technical specs

CSV column name:

patient_id|deceased

Only when:

Required:

true

Mapping of the clinical building blocks (indicative only)

Concept:

be.en.hd.Patient

Data element:

DeathIndicator

Options

Label	Value
Yes	TRUE
No	FALSE

date

Date of death

Technical specs

Format:

DD/MM/YYYY

CSV column name:

patient_id|date_of_death

Only when:

Required:

true

Mapping of the clinical building blocks (indicative only)

Concept:

be.en.hd.Patient

Data element:

DateOfDeath

choice

Is the patient deceased?

Technical specs

CSV column name:

CD_DEATH

Required:

true

Options

Label	Value
Yes	1
No	0

date

Date of death

Technical specs

Format:

DD/MM/YYYY

CSV column name:

DT_DEATH

Only when:

Required:

true

Validation

Date of death cannot be in the future (error)
Date of death cannot be before date of birth (error)
Date start hospitalisation needs to be before or equal to the date of death (error)
Date symptoms onset cannot be after date of death (error)

text

Immediate cause of death

Help

This is the final condition that led to the death of the patient. Use "Z78.9 - Other specified health status" if you can not find a correct ICD-10 code and specify in the free text field. In case of unknown cause of death, use “ZZZZ – Unknown".

Technical specs

CSV column name:

CD_COD

Reference list:

ICD10CM_2019

Only when:

Required:

true

text

Specify other cause of death

Technical specs

CSV column name:

TX_COD_OTH

Only when:

Required:

false

choice

Was this immediate cause of death a consequence of the pertussis infection

Technical specs

CSV column name:

CD_COD_CONSEQ_PERTS

Only when:

Required:

true

Options

Label	Value
Yes	1
No	0
Unknown	9

2 Hospital and physician

text

RIZIV/INAMI-code of the responsible physician

Technical specs

CSV column name:

CD_RIZIV_TREAT_PHYS

Length:

100

Reference list:

PHYSICIAN

Required:

true

Mapping of the clinical building blocks (indicative only)

Concept:

be.en.hd.HealthProfessional

Data element:

HealthProfessionalIdentificationNumber

text

NIHDI code of the hospital

Not to be included in the CSV.

Technical specs

CSV column name:

CD_INSTAL_ID

Length:

100

Computed:

Required:

true

Mapping of the clinical building blocks (indicative only)

Concept:

be.en.hd.HealthcareProvider

Data element:

HealthcareProviderIdentificationNumber

3 Hospitalisation

date

Date start hospitalisation

Technical specs

Format:

DD/MM/YYYY

CSV column name:

DT_START_HOSPZ

Required:

true

Mapping of the clinical building blocks (indicative only)

Concept:

be.en.hd.Encounter

Data element:

StartDateTime

Validation

Date end hospitalisation must be after date start hospitalisation (error)
Date start hospitalisation needs to be after or equal to the date of birth (error)
Date start hospitalisation needs to be before or equal to the date of death (error)
The difference between date of start hospitalisation and date of birth$ can not be higher than or equal to 3 years (error)

date

Date end hospitalisation

Technical specs

Format:

DD/MM/YYYY

CSV column name:

DT_END_HOSPZ

Required:

true

Mapping of the clinical building blocks (indicative only)

Concept:

be.en.hd.Encounter

Data element:

EndDateTime

Validation

Date end hospitalisation must be after date start hospitalisation (error)

text

Hidden filter field 2

Not to be included in the CSV.

Technical specs

CSV column name:

CD_HID_2

Reference list:

FILTER

Default value:

FILT1

Only when:

Required:

false

Read only

text

Destination after discharge

Help

Please select '22232009-Hospital’ if the patient is transferred to another hospital

Technical specs

CSV column name:

CD_DISCH

Reference list:

DestinationCBB

Required:

true

Mapping of the clinical building blocks (indicative only)

Concept:

be.en.hd.Encounter

Data element:

Destination

text

If transferred, to which hospital?

Help

If the destination hospital is not known, please choose "99999999 - Unknown"

Technical specs

CSV column name:

CD_TRFR

Reference list:

RIZIV

Only when:

Required:

false

choice

Admission to intensive care unit

Technical specs

CSV column name:

CD_ADMI_ICU

Required:

true

Options

Label	Value
Yes	305351004
No	0
Unknown	9

Mapping of the clinical building blocks (indicative only)

Concept:

be.en.hd.Encounter

Data element:

StartDateTime

4 Risk factors

choice

Premature birth of newborn

Help

Premature birth means babies who are born between 23 and 36 weeks of gestation

Technical specs

CSV column name:

CD_PREM_BIRTH

Required:

true

Options

Label	Value
Yes	367494004
No	0
Unknown	9

number

Gestational age (in weeks)

Help

The gestational age needs to be between 23-36 weeks

Technical specs

CSV column name:

MS_GEST_AGE

Length:

2.0

Only when:

Required:

false

Mapping of the clinical building blocks (indicative only)

Concept:

be.en.hd.Pregnancy

Data element:

PregnancyDuration

Validation

The gestational age should be an integer value (error)
The gestational age should be between 23-36 weeks (error)
The gestational age should be between 23-36 weeks (error)

number

Child's weight at birth (g)

Technical specs

CSV column name:

MS_BIRTH_WGHT

Length:

4.0

Required:

false

Mapping of the clinical building blocks (indicative only)

Concept:

be.en.hd.BodyWeight

Data element:

WeightValue

Validation

The child's weight at birth should be an integer value (error)
Please double check if the child's weight at birth is correctly entered in grams (error)
The child's weight at birth should be a positive value (error)

number

Child's current weight (g)

Technical specs

CSV column name:

MS_CHLD_WGHT

Length:

5.0

Required:

false

Mapping of the clinical building blocks (indicative only)

Concept:

be.en.hd.BodyWeight

Data element:

WeightValue

Validation

The child's current weight should be an integer value (error)
The child's current weight should be a positive value (error)
Please double check if the child's current weight is correctly entered in grams (error)

number

Child's current height (cm)

Technical specs

CSV column name:

MS_CHLD_HGHT

Length:

3.0

Required:

false

Mapping of the clinical building blocks (indicative only)

Concept:

be.en.hd.BodyHeight

Data element:

Heightvalue

Validation

The child's current height should be an integer value (error)
Please double check if the child's current height is correctly entered in centimetres (error)
The child's current height should be a positive value (error)

choice

Child goes to child day care center

Technical specs

CSV column name:

CD_CHLD_DAYC

Required:

true

Options

Label	Value
Yes	413817003
No	0
Unknown	9

choice

Child has sibling(s)

Technical specs

CSV column name:

CD_SIBL

Required:

true

Options

Label	Value
Yes	1
No	0
Unknown	9

choice

Sibling(s) goes to day care/school

Technical specs

CSV column name:

CD_SIBL_SCHL

Only when:

Required:

true

Options

Label	Value
Yes	1
No	0
Unknown	9

choice

Underlying cardiovascular/respiratory/neurological/immunocompromising conditions

Technical specs

CSV column name:

CD_UNDERLY_COND

Required:

true

Options

Label	Value
Yes	1
No	0
Unknown	9

list

Please specify the underlying conditions

This is a container for multiple answers. See the reference documentation for more details. Below you can find the information about the fields of the container

Help

In case of more than one underlying condition, use the button ‘add new item” below

Element conditions

Message	Expression

Mapping of the clinical building blocks (indicative only)

Concept:

be.en.hd.Problem

Data element:

ProblemName

List items

Section help

In case of more than one underlying condition, use the button ‘add new item” below

text

Underlying conditions

Help

Use "Z78.9 - Other specified health status" if you can not find a correct ICD-10 code and specify in the free text field. In case of unknown underlying condition, use “ZZZZ – Unknown". You may type part of the disease/condition for quick access to the disease/condition in the list.

Technical specs

CSV column name:

please_specify_the_underlying_conditions|0|CD_UNDERLY_COND_OTH

Reference list:

ICD10CM_2019

Only when:

Required:

false

text

Specify the other underlying condition

Technical specs

CSV column name:

please_specify_the_underlying_conditions|0|TX_UNDERLY_COND_OTH

Only when:

Required:

false

5 Laboratory investigation

5.1 PCR

choice

PCR

Technical specs

CSV column name:

CD_PCR

Required:

true

Options

Label	Value
Performed	1
Not performed	2
Unknown	9

date

Date of sampling

Technical specs

Format:

DD/MM/YYYY

CSV column name:

DT_PCR_SAMPLING

Only when:

Required:

false

Mapping of the clinical building blocks (indicative only)

Concept:

be.en.hd.LaboratoryTestResult

Data element:

CollectionDateTime

choice

Result

Technical specs

CSV column name:

CD_PCR_RSLT

Only when:

Required:

true

Options

Label	Value
Positive	1
Negative	2
Indeterminate	3
Unknown	9

Mapping of the clinical building blocks (indicative only)

Concept:

be.en.hd.LaboratoryTestResult

Data element:

TestResult

choice

If positive, specify

Technical specs

CSV column name:

CD_PCR_RSLT_POS

Only when:

Required:

true

Options

Label	Value
B. pertussis	5247005
B. holmesii	116035000
B. parapertussis	26183002
B. bronchiseptica	10620008
Unknown	9

5.2 Serology

choice

Serology

Technical specs

CSV column name:

CD_SERO

Required:

true

Options

Label	Value
Performed	1
Not performed	2
Unknown	9

date

Date of sampling

Technical specs

Format:

DD/MM/YYYY

CSV column name:

DT_SERO_SAMPLING

Only when:

Required:

false

Mapping of the clinical building blocks (indicative only)

Concept:

be.en.hd.LaboratoryTestResult

Data element:

CollectionDateTime

choice

Result

Technical specs

CSV column name:

CD_SERO_RSLT

Only when:

Required:

true

Options

Label	Value
Positive	1
Negative	2
Indeterminate	3
Unknown	9

Mapping of the clinical building blocks (indicative only)

Concept:

be.en.hd.LaboratoryTestResult

Data element:

TestResult

6 Clinical information

date

Date symptoms onset

Technical specs

Format:

DD/MM/YYYY

CSV column name:

DT_SYMP_ONST

Required:

false

Mapping of the clinical building blocks (indicative only)

Concept:

be.en.hd.Problem

Data element:

ProblemStartDate

Validation

Date symptoms onset cannot be before date of birth (error)
Date symptoms onset cannot be after date of death (error)

choice

Presence of paroxysmal cough/whoop

Technical specs

CSV column name:

CD_COUGH

Required:

true

Options

Label	Value
Yes	43025008
No	0
Unknown	9

Mapping of the clinical building blocks (indicative only)

Concept:

be.en.hd.Problem

Data element:

ProblemName

choice

If yes, number of weeks of cough

Technical specs

CSV column name:

CD_WK_COUGH

Only when:

Required:

true

Options

Label	Value
	1
1-3 weeks	2
>3	3
Unknown	9

choice

Apnea

Technical specs

CSV column name:

CD_APN

Required:

true

Options

Label	Value
Yes	1023001
No	0
Unknown	9

Mapping of the clinical building blocks (indicative only)

Concept:

be.en.hd.Problem

Data element:

ProblemName

choice

Cyanosis

Technical specs

CSV column name:

CD_CYANO

Required:

true

Options

Label	Value
Yes	3415004
No	0
Unknown	9

Mapping of the clinical building blocks (indicative only)

Concept:

be.en.hd.Problem

Data element:

ProblemName

choice

Hypoxia

Technical specs

CSV column name:

CD_HYPX

Required:

true

Options

Label	Value
Yes	1
No	0
Unknown	9

Mapping of the clinical building blocks (indicative only)

Concept:

be.en.hd.Problem

Data element:

ProblemName

choice

Posttussive vomiting

Technical specs

CSV column name:

CD_VOM

Required:

true

Options

Label	Value
Yes	1
No	0
Unknown	9

Mapping of the clinical building blocks (indicative only)

Concept:

be.en.hd.Problem

Data element:

ProblemName

7 Antibiotic treatment

choice

Antibiotic pertussis treatment

Technical specs

CSV column name:

CD_ANTBIO_TREAT

Required:

true

Options

Label	Value
Yes	1
No	0
Unknown	9

Mapping of the clinical building blocks (indicative only)

Concept:

be.en.hd.MedicationAdministration

Data element:

AdministrationProduct::FarmaceuticalProduct

Validation

Please complete the 'Which antibiotics' information (error)

text

Hidden filter field

Not to be included in the CSV.

Technical specs

CSV column name:

CD_HID

Reference list:

FILTER

Default value:

FILT2

Only when:

Required:

false

Read only

list

Which antibiotics

This is a container for multiple answers. See the reference documentation for more details. Below you can find the information about the fields of the container

Help

In case of more than one antibiotic, use the button ‘add new item” below

Element conditions

Message	Expression
Date antibiotic end must be equal to or after date antibiotic start	typeof $['DT_ANTBIO_START'] === 'string' && typeof $['DT_ANTBIO_END'] === 'string'?new Date($['DT_ANTBIO_END']) >= new Date($['DT_ANTBIO_START']):true

List items

Section help

In case of more than one antibiotic, use the button ‘add new item” below

text

If yes, which antibiotics

Technical specs

CSV column name:

which_antibiotics|0|CD_ANTBIO

Reference list:

MedicinalProductSCT

Required:

false

list

If other, please specify

This is a container for multiple answers. See the reference documentation for more details. Below you can find the information about the fields of the container

List items

text

If other, please specify

Technical specs

CSV column name:

which_antibiotics|0|other_antibiotics|TX_ANTBIO_OTH

Required:

false

Mapping of the clinical building blocks (indicative only)

Concept:

be.en.hd.MedicationAdministration

Data element:

AdministrationProduct::FarmaceuticalProduct

date

Date antibiotic start

Technical specs

Format:

DD/MM/YYYY

CSV column name:

which_antibiotics|0|DT_ANTBIO_START

Required:

false

Mapping of the clinical building blocks (indicative only)

Concept:

be.en.hd.MedicationAgreement

Data element:

PeriodOfUse:: StartDateTime

date

Date antibiotic end

Technical specs

Format:

DD/MM/YYYY

CSV column name:

which_antibiotics|0|DT_ANTBIO_END

Required:

false

Mapping of the clinical building blocks (indicative only)

Concept:

be.en.hd.MedicationAgreement

Data element:

PeriodOfUse:: EndDateTime

8 Complications

choice

Chest X-Ray for pneumonia

Technical specs

CSV column name:

CD_XR_PNEUMO

Required:

true

Options

Label	Value
Positive	1
Negative	2
Not done	3
Unknown	9

choice

Seizures due to pertussis

Technical specs

CSV column name:

CD_SZR

Required:

true

Options

Label	Value
Yes	1
No	0
Unknown	9

Mapping of the clinical building blocks (indicative only)

Concept:

be.en.hd.Problem

Data element:

ProblemName

choice

Acute encephalopathy

Technical specs

CSV column name:

CD_ACUT_ENCPH

Required:

true

Options

Label	Value
Yes	1
No	0
Unknown	9

Mapping of the clinical building blocks (indicative only)

Concept:

be.en.hd.Problem

Data element:

ProblemName

choice

Feeding issues which need intervention

Technical specs

CSV column name:

CD_FEEDG_INTVENT

Required:

true

Options

Label	Value
Yes	1
No	0
Unknown	9

9 Interventions

choice

Oxygen therapy

Help

e.g. Nasal canula, Optiflow

Technical specs

CSV column name:

CD_O2_THERPY

Required:

true

Options

Label	Value
Yes	57485005
No	0
Unknown	9

Mapping of the clinical building blocks (indicative only)

Concept:

be.en.hd.Procedure

Data element:

ProcedureType

choice

Non-invasive ventilation

Help

e.g. CPAP

Technical specs

CSV column name:

CD_VENTIL_NINV

Required:

true

Options

Label	Value
Yes	428311008
No	0
Unknown	9

Mapping of the clinical building blocks (indicative only)

Concept:

be.en.hd.Procedure

Data element:

ProcedureType

choice

Intubation with ventilation

Technical specs

CSV column name:

CD_VENTIL_INTUB

Required:

true

Options

Label	Value
Yes	1
No	0
Unknown	9

Mapping of the clinical building blocks (indicative only)

Concept:

be.en.hd.Procedure

Data element:

ProcedureType

10 Possible source of infection

choice

Is there a suspected infection source

Help

The suspected infection source can be a place and/or person

Technical specs

CSV column name:

CD_INFCT_SRC

Required:

true

Options

Label	Value
Yes	1
No	0
Unknown	9

choice

Place

Technical specs

CSV column name:

CD_INFCT_SRC_PLC

Only when:

Required:

false

Options

Label	Value
Hospital	22232009
Community (includes daycare, school,...)	1
Home	264362003
Not applicable	385432009
Unknown	9

choice

Person

Technical specs

CSV column name:

CD_INFCT_SRC_PERS

Only when:

Required:

false

Options

Label	Value
Mother	72705000
Father	66839005
Sibling	375005
Relative	125677006
Non-sibling child	1
Non-relative caregiver	2
Not applicable	385432009
Unknown	9

11 Vaccination

11.1 Vaccination child

choice

Pertussis vaccine child

Technical specs

CSV column name:

CD_CHLD_VACCI

Required:

true

Options

Label	Value
Yes	39343008
No	0
Unknown	9

Mapping of the clinical building blocks (indicative only)

Concept:

be.en.hd.Vaccination

Data element:

ProductCode

choice

Number of doses

Technical specs

CSV column name:

CD_CHLD_VACCI_DOS

Only when:

Required:

true

Options

Label	Value
1	1
2	2
3	3
4	4
Unknown	9

Mapping of the clinical building blocks (indicative only)

Concept:

be.en.hd.Vaccination

Data element:

date

Date last dose

Technical specs

Format:

DD/MM/YYYY

CSV column name:

DT_CHLD_VACCI_LAST_DOS

Only when:

Required:

false

Mapping of the clinical building blocks (indicative only)

Concept:

be.en.hd.Vaccination

Data element:

VaccinationDate

11.2 Vaccination mother

choice

During pregnancy

Technical specs

CSV column name:

CD_VACC_PREGY

Required:

true

Options

Label	Value
Yes	1
No	0
Unknown	9

multiline

Information

Not to be included in the CSV.

Technical specs

CSV column name:

information

Default value:

(EN) Please fill in the date of vaccination if known. If the exact date is not known, then please fill in week of pregnancy. If both date and week of pregnancy are unknown, then please fill in trimester. Leave blank if none of the 3 options are known. (FR) Veuillez remplir la date de la vaccination si vous la connaissez. Si la date exacte n'est pas connue, veuillez indiquer la semaine de grossesse. Si la date et la semaine de grossesse sont toutes les deux inconnues, veuillez indiquer le trimestre. Laissez en blanc si aucune des 3 options n'est connue. (NL) Gelieve de datum van vaccinatie in te vullen als deze gekend is. Indien de exacte datum niet gekend is, gelieve dan de week van zwangerschap in te vullen. Indien zowel datum als week van zwangerschap ongekend zijn, gelieve dan het trimester van zwangerschap in te vullen. Laat oningevuld, indien geen enkele van deze drie opties gekend is.

Only when:

Required:

false

Read only

date

Date

Technical specs

Format:

DD/MM/YYYY

CSV column name:

DT_VACC_PREGY

Only when:

Required:

false

number

Week pregnancy

Technical specs

CSV column name:

MS_WK_VACC_PREGY

Length:

2.0

Only when:

Required:

false

Validation

The week of pregnancy should be an integer value (error)
The number of weeks is maximum 42 (warning)

choice

Trimester

Technical specs

CSV column name:

CD_TRIM_VACC_PREGY

Only when:

Required:

false

Options

Label	Value
1	1
2	2
3	3

choice

What is the reason?

Technical specs

CSV column name:

CD_REAS_VACC_PREGY

Only when:

Required:

false

Options

Label	Value
Not offered	410530007
Refused	171265000
Premature	1
Forgot	2
Other	3

choice

Post delivery

Technical specs

CSV column name:

CD_VACC_PST_DLV

Only when:

Required:

true

Options

Label	Value
Yes	1
No	0
Unknown	9

11.3 Vaccination partner

choice

During or post pregnancy (cocoon)

Technical specs

CSV column name:

CD_VACC_PNR

Required:

true

Options

Label	Value
Yes	1
No	0
No partner	2
Unknown	9